Multiple miscarriages
Filed under: Your Pregnancy, Health & Safety: Babies, Medical Conditions, Bump Watch, Playground Bureau
Recently someone wrote into ParentDish about having had multiple miscarriages. She was, from what I could tell from the tone of her email, basically at her wit's end about what to do. More importantly, this woman (who shall remain anonymous) asked for comfort more than for advice.
Having a miscarriage is essentially the worst thing, emotionally as well as physically, that most women face. Never mind that the statistics show that as many as 15--20% of all pregnancies end in miscarriage. Never mind all the words of wisdom and experience posted all over the web offering helpful how-to's on avoidance, spotting the symptoms of one and what to do about it when you do.
Those tips only serve to provide the woman with a sense that she is in control of her miscarriage. Which is, in and of itself, a terrible thing. It's true that the majority of miscarriages are attributed to abnormalities in the chromosomes. That still doesn't make anyone feel better about having one, does it? I wouldn't think so.
While many women will face having one miscarriage in their lifetime (many of them without even knowing it; they think they've had an unusual period), some will face more than one.
It's hard enough if not downright impossible to come to terms with having had one miscarriage, but it seems cruel to have to endure more than one.
When that happens the red flags go up, both for eager parents-to-be and physicians. Inevitably testing will be done, for what it's worth (not much) and the poor hopeful parents-to-be will play an endless waiting game to see if they will ever achieve their dream.
From my own experience I must admit the desire for a child is stronger than anything I've ever felt. To say that not being able to fulfill that desire is maddening would be an insult to anyone--woman or man--who has gone through a miscarriage.
The truth is that nothing makes you feel better. No words of wisdom, no kind hands, no looking on the bright side: "We can always try again!" It's a painful process no matter how you look at it.
I remember when a colleague of mine went into labor way, way too early. Her infant son ended up not making it. I remember saying to myself, there are far, far worse things than a miscarriage. Perhaps that is true and perhaps not. It's hard to say as each person's experience is vastly different than another's.
That being said, the best place to get support for having a miscarriage--especially when you've suffered more than one--is among others who share your pain. Ultimately, a serious discussion will need to be had with the OB about what, if anything, can be done.
Sometimes nothing can be done, and women play the waiting game that continually ends in disappointment, sadness and anger. When I see pregnant celebrities like Nichole Richie, who took her health (and that of her baby's) completely for granted by starving herself, drinking and driving and doing drugs it makes my literally sick to my stomach knowing there are women out there in the world who want nothing more than a child--NOTHING--and yet cannot conceive.
Yes, the option for adoption and foster care are out there. Those are wonderful opportunities where everyone wins. Not every woman (or man) wants to go that route, however. And that's their choice. I don't want to get into a discussion about adoption or foster care right now--that's not really what this post is about.
What I would like to know is if you know of any on-line or off-line information or support groups for women (and men) who've suffered multiple miscarriages. If so, please let me know and I would be happy to post them here. Several suggestions from my colleagues at ParentDish include Redbook's Infertility Diaries and Julia's blog Hippogriffs (both suggested by ParentDish's own Christina Sparro.
While I don't expect answers--are there any, really?--I think your recommendations might offer just what our reader was looking for: comfort. I know in the past you've comforted me, oh friends from afar. Hopefully we'll be able to do the same for our reader.
Dear reader who sent in the comment about having had four miscarriages--we know there are no words to make you feel better, to take away all your sadness. What we do know is that comfort can be found in community, and sometimes from the kindness of strangers.












ReaderComments (Page 1 of 1)
8-13-2007 @ 3:46PM
Marcia said...I thank God for no having to go through this, but I do feel horrible for the women and men that have to deal with this situation. I kept a journal online over my pregnancy and everytime I even mentioned having morning sickness or just being tired (which lasted the entire time) some hateful person would comment that I was ungreatful and had no respect for those that couldn't conceive or have and ended badly. I almost cried that someone thought me expressing what exactly I was experiencing meant I was ungreatful and disrespectful. You are right, there are many good deserving parents out there. It's a shame to see all of these horrible, trashy people will their clan of kids they don't deserve.
I don't really know of where they could find a support group, but I do offer my deepest condolences and many prayers for that perfect baby to finally arrive in their lives.
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8-13-2007 @ 4:59PM
Joy said...I suffered a miscarriage before becoming pregnant with my son. It was hard for me because I was alone in a new city and my husband happened to be out of town on business. I never forgot the miscarriage and even though I have my son, I still think about it and feel sad. The funny thing is many women I knew and met started coming out and saying they also had miscarriages. Some happened 30-40 years ago, and their family members did not know until now. My mom could never have children, and she and my dad adopted my brother and then me. I remember my mom telling me she had to have a hysterectomy early which meant she could never bear children of her own. I am thankful my mom and dad had enough love to give me as an adopted child. I knew that even if I did not have the opportunity to bear my own child, I would inevitably adopt. Please know we are out here no matter if it's one miscarriage or several. The hurt is still the same. Take care.
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8-13-2007 @ 4:27PM
Cathy said...I found the hardest part of multiple miscarriages being the unknown. After 2 miscarriages, I was referred to an RE who ran almost every test imaginable. I had 3 and 4 while in his care. After 4 and no diagnosis, I was referred to a recurrent miscarriage specialist. I had never heard of this before. At the time, 3 years ago, she was possibly the only one in the US. She ran more tests and I although I still didn't have a diagnosis, I felt cared for and understood. The best, non-doctor resource I found was the book, "Coming to Term." It contained a lot of good information without being too sappy or too clinical.
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8-13-2007 @ 5:19PM
adriennermoss said...There is a large infertility (both primary and secondary) blog universe, and it is an amazing support system. I know it well, as I've suffered multiple miscarriages after having my son in 2002.
A great place to start is Stirrup Queens and Sperm Palace Jesters (www.stirrup-queens.blogspot.com). The proprietress is a former Stirrup Queen herself (a much better name than infertile) and a writer. She maintains a huge blogroll of other blogs that cover every aspect of this sad and painful experience (including adoption, male factor, donor egg, IVF, IUI, PCOS, multiple miscarriages, etc.), plus references to information for research.
When things have been very dark for me emotionally, the support system I've found in the blogosphere has been invaluable. And writing my own blog about my experiences has helped as well.
Adrienne (www.maxsmommy.blogspot.com)
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8-13-2007 @ 6:30PM
Ethel said...I don't have a lot that I feel I can offer, my own mother had two miscarriages before getting pregnant with me and says about them that "Probably miscarriages are a blessing." Part of her saying that is her ambivalence about having the miscarriages and subsequent D&C, part of it is the experience of an older woman. Often the older women have an almost Reaper wisdom about life and babies that is quite troubling and saddening to the younger set, and definitely not nostalgic (unlike old men who get softer). Maybe most of us are as cold as that is how we protect ourselves from the pain and sorrow that life throws our way far too often.
That being written (said), I think that Neonatal Doc's latest entry on loss of a premature baby and miscarriage might be a comfort since its heartfelt, from a doctor, and kind : http://neonataldoc.blogspot.com/
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8-13-2007 @ 6:52PM
Catherine said...Before I had my first son, I had 2 losses - at 8w and 14w. Between my 2nd and 3rd son, I had 3 more losses, all about 7w along. Since I met my current husband, we have lost 5 babies between 6-8w. Plus many more early (chemical) losses.
I read once that it will take 2 years to get over a loss. Some days I feel like I won't live long enough to get over my grief, so many babies lost.
There is loss poetry, articles and a book list (though old now) at Shattered Dreams - http://borntolove.com/miscarriage.html
I also have a blog on Miscarriage at Life Begins... - http://born2luv.blogspot.com/
I also found a wonderful support group in Ontario that we attended and got great support and friendship - Perinatal Bereavement Services Ontario - http://pbso.ca/
Two books that helped me, deal specifically with educating parents to help prevent miscarriage. In his book, Dr. Stefan Semchyshyn (along with Carol Colman) is proud of a 97% success rate with his program - "How to Prevent Miscarriage, and Other Crises of Pregnancy".
Dr. Johnathan Scher (along with Carol Dix) offers developments in medical science for the prevention of recurrent miscarriage - "Preventing Miscarriage: The Good News".
BTW, I had all the recurrent loss testing done - twice - no reason was ever found. At first they said I was too young, then they said it was just bad luck. Now they tell me I am too old. I was never the RIGHT age, I guess...
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8-13-2007 @ 7:23PM
M4Mommy said...I suffered 6 miscarriages between 4 and 18 wks when I was married to my x husband. When he and I divorced he became a father to a very cute son. So I thought it was "me"
When I married my second(and forever husband!) I wanted to make sure that "I" was ok. After some initial tests and questions it was determined that I would "need help getting and staying pregnant" By this time I was honestly fine with never having children. So we began making plans for our child free life. I was now older and entrenched in my career. Then low and behold. I got pregnant.
After dealing with severe kidney stones(in my first trimester) morning sickness to beat the band for 37 of the 38 weeks I carried her. And an abundance of fibroids I delivered, via c sect a healthy and intelligent daughter.
It wasnt an easy road. And my outlook on life is much different than many other womens and most of the other posters on Parentdish. But I know now that the powers that be meant for me to have this child with my current husband. Not the boy I was married to when I was younger.
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8-13-2007 @ 10:07PM
Jennifer said...I have had multiple miscarriages. It took us 5 years and two losses (yes, it took that long to conceive only to lose the pregnancy)before we had my beautiful daughter. We suffered another loss before her brother was born. I sought treatment from a reproductive endocrinologist and cannot encourage couples enough to seek one out. We didn't go through fertility treatments, we never needed to because he ran all of the tests my OB never thought to do and diagnosed me with PCOS. With the help of a diabetic medication and a change in my diet I was able to conceive. I NEVER would have thought that my insulin levels would be causing my infertility.
As far as support groups go I often would hit various bulletin boards online.
I do have to offer a word of caution though. The grieving process is very painful, and I'm sure every person is different. However I found that I had to STOP seeking out all these reminders of my loss. If I read one more article, blog entry, book, website, or had one more person tell me about their losses I thought I was going to scream. I found it was helpful immediately following the miscarriage but that it became too easy to be sucked in to grieving and feeling worthless rather than actively taking steps to address the issues.
Do I still mourn my losses? Of course I do. I think about the other children I could have had. I think about the sheer number of pregnancies I have had and I'm sad. But I also know I have to live in the moment for the sake of the children I do have so that my wish can fully come true.
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8-14-2007 @ 4:04AM
wendy said...I have suffered 2 losses after struggling with infertility. I found support at http://www.nationalshareoffice.com. There are different message boards for different stages of loss as well as live chats. There are some wonderful people there always willing to listen and offer comfort and advice when needed. Even though there were a lot of heartbreaking stories, I found it helpful to know that I was not alone and that there was still hope for me.
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8-18-2007 @ 1:40AM
Elaine said...(pssst: you got Christina's last name wrong.)
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