Skip to Content

Looking for the best info on potty training your toddler? Click here.

A Little More: Saying grace

Categories: Kids 5-7, Special needs

Here's one thing you might not know about my son Avery: before each meal, he insists that we all say grace.

In our family, that means we join hands and say a little prayer, a simple rhyme for babies and small children that goes like this, "God is great, God is good, let us thank him for our food. Amen." When it comes to the end, Avery says "Amen" with such gleeful delight that he's nearly shouting; it sounds more like we're doing a team cheer than giving the food a blessing.

It doesn't matter to Avery where we are--we could be in a restaurant with servers in crisp white shirts and every time you take a sip of water, a busboy appears to refill it for you; or we could be seated beneath a picnic umbrella in the food court of the Costco, eating our hot dogs and soda (with 1 free refill) for a dollar fifty. Either way, Avery will not begin eating until we've joined hands and said grace.

Certainly, this burst of piety isn't something I expected when I learned Avery had Down syndrome. I don't know what I expected, really--my friend Kathy and I were recently talking about it. She's mom to a son with Down syndrome too, and we each had different, albeit wrong, ideas about what being the mom to a special needs child would mean to us. She felt, in part, that it would require her to assume some sort of mantle of "specialness." I thought (and I have no idea why I believed this) that I would need to begin driving a van. A white one.

None of these things have proven true, of course. Being Avery's mom doesn't make me feel any more, or less, special than being a mom to my other kids does. And Avery hasn't needed any extra adaptive equipment (other than the usual things, like when he was littler, a stroller, or now, a car seat) so there's no need for my white van.

What has proven true is that mothering Avery has brought people into my life that I might not have known, otherwise. Therapists, of course, and doctors and nurses. And other parents of children with Down syndrome, and parents of kids with CP and autism and Asperger's. Children who are learning Braille, or sign language. Children who simply don't fit the norm, for any number of reasons.

Sometimes people liken being the parent of a special needs child to having taken a detour in life--like finding yourself in Holland, for example, when you'd made reservations for a trip to Italy. I know this analogy works for some families, but not for others. I've come to understand that the one-size-fits-all approach is not a good model for human beings.

I like saying grace before every meal. I like that Avery reminds us to do it, that he requires us to slow down 3 times a day for a moment of gratitude. Because of him, we hold hands, and are thankful.

I feel that way about my fellow special needs parents. I don't know if you consider yourself in Holland or not, but wherever we are, whenever I poke my head up and look around, I realize I really like my fellow travelers. Parents who can talk PT or ST or OT, parents who know about g-tubes and canulas and oxygen tanks tucked in the corners of rooms. Moms and Dads who know infant CPR and how to insert a trach and what to do if a child turns blue.

We know all these things and we also play Peek-a-Boo and sing "Ring Around the Rosie" and count tiny toes with "This Little Piggy." We marvel at low-tone babies learning to sit up, or at the intricacies of a child decoding the pattern of raised dots in a line of Braille.

There are many things I didn't know about being Avery's mom, in the beginning. But I'm learning, from him, and from all of you. And I wish for us a safe journey to wherever we're headed--may we find our paths filled with lots of grace, and always, traveling mercies.

Recent Posts

Reader Comments (Page 1 of 1)

ParentDish Polls

    Hollywood's Hottest Dad
    51% of you voted Hugh Jackman the Hottest Dad in Hollywood by a landslide. Wolverine edged out Brad Pitt and Johnny Depp -- and we can see why.

    Jewel Samad/Getty Images

    Best Stepdad
    How cool would it be to have Ashton Kutcher as your stepdad? Pretty cool, according to 52% of you. After all, you wouldn't have to teach him how to send a text message or use Twitter! Kutcher is pictured here in 2007 with stepdaughters Rumer and Tallulah Willis.

    Evan Agostini/Getty Images

    Who cares about IQ?
    Not ParentDish readers! 80% of you said that this 24-year-old UK mom should be allowed to keep her baby--even after social workers said she was "too stupid" to take care of her.

    Jenny Goodall, Daily Mail / ZUMA Press

    Enough With the Gosselins!
    Will you buy Kate Gosselin's cookbook? 64% of you say no -- and you're also tired of hearing about her.

    David Livingston, Getty Images

    Best Babysitters
    31% of you said that you would leave your kids with Ellen and Portia, while only 9% would trust Oprah to babysit. Interesting, since none of the celebs are parents.

    Kevin Winter, Getty Images

    Fav Celeb Mom
    Jennifer Garner is your favorite celebrity mom, beating out Angelina Jolie and First Lady Michelle Obama with 37% of the vote.

    Kris Connor, Getty Images

    Bad Mommy
    Dina Lohan and Courtney Love tied for worst celebrity mom, each with 32% of your votes. Only 3% of you said that Kate Moss was a bad mom, though, which says a lot -- mostly what a mess Dina Lohan is.

    Michael Buckner, Getty Images

    Unimpressed
    Only 8% of you think Bristol Palin a better parent than baby daddy Levi. [Get the full story]

    Getty

    Octo Overload?
    60% of you are worried about her kids. Maybe because she reportedly once stripped under the name "Angelina?" [Get the full story]

    Getty

    Tough to Swallow
    45% of you said this Burger King ad was "totally inappropriate." What would the King say? [Get the full story]

    YouTube

Features

Recent Comments