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Parents sacrifice everything for dying daughter

Categories: Preschoolers, Fun & activities, Holidays, Medical conditions, Special needs

A fairy tale castle in Disneyland.Three-year-old Caitlin Powell was diagnosed with Sanfilippo Syndrome, a rare disease that will, according to her doctors, bring her life to a close before she's a teenager. Now, most parents, upon hearing such news, would continue with their lives while trying to make their child as comfortable and as happy as possible.

Not so Ben and Emma Powell. They weren't content with the idea of taking their daughter to the local park after work and on weekends; instead, they wanted to fill her remaining years with more joy and excitement than most people experience in a normal lifespan. So they started making sacrifices. The quit or cut back on their careers so as to have more time with Caitlin and then sold their house to have the funds to do so.

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First up on their itinerary is Disney World in Florida and, while they're there, swimming with dolphins. Then they'll hit a couple of theme parks back home in England along with the Scottish Highlands. Next year, they'll hit the African continent for a safari. "She won't be with us for very long so myself and Ben have made a conscious decision to make every day special for her from now on," says Emma Powell. "Caitlin's happiness is our motivation."

One of my few regrets is that I didn't take out a second mortgage in order to take my dad on a trip to his native Germany before he died. It sounds like the Powells won't have the same regrets. Kudos to them for putting their daughter first.

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