Parents sacrifice everything for dying daughter
Filed under: Preschoolers, Activities: Babies, Holidays, Medical Conditions, Special Needs
Three-year-old Caitlin Powell was diagnosed with Sanfilippo Syndrome, a rare disease that will, according to her doctors, bring her life to a close before she's a teenager. Now, most parents, upon hearing such news, would continue with their lives while trying to make their child as comfortable and as happy as possible.Not so Ben and Emma Powell. They weren't content with the idea of taking their daughter to the local park after work and on weekends; instead, they wanted to fill her remaining years with more joy and excitement than most people experience in a normal lifespan. So they started making sacrifices. The quit or cut back on their careers so as to have more time with Caitlin and then sold their house to have the funds to do so.
10 Places to Take Your Kids Before They Grow Up
First up on their itinerary is Disney World in Florida and, while they're there, swimming with dolphins. Then they'll hit a couple of theme parks back home in England along with the Scottish Highlands. Next year, they'll hit the African continent for a safari. "She won't be with us for very long so myself and Ben have made a conscious decision to make every day special for her from now on," says Emma Powell. "Caitlin's happiness is our motivation."
One of my few regrets is that I didn't take out a second mortgage in order to take my dad on a trip to his native Germany before he died. It sounds like the Powells won't have the same regrets. Kudos to them for putting their daughter first.












ReaderComments (Page 5 of 7)
7-18-2008 @ 10:52PM
Chrissy said...you two parents did the darnest thing right. your girl comes first that what all the matters for now. spend every min with her and she'll get to enjoy it all along. God Bless all of you all.
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7-18-2008 @ 11:08PM
Jennifer Clark said...I HOPE ALL GOES WELL YOU YOUR FAMILY AS YOU GO ON THIS JOURNEY FOR YOUR DAUGHTER.. GO FOR IT, MOM AND DAY. YOU WILL HAVE A LOT OF BEAUTIFUL MEMORIES. GOD BLESS YOU......
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7-18-2008 @ 11:03PM
Christine said...My son is fighting Leukemia, please consider helping us through donations to our Light the Night walk for the Leukemia Society Follow this link to learn more...
http://www.active.com/donate/ltnJackso/2370_cmwjgw
Thank you!
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7-18-2008 @ 11:29PM
Jennifer Clark said...I wish I could have walked on the beach with my Mother before she died. I didn't get to. So I took my daughter, (she had grown up and became a lovely young lady) and guess what we did? Just my daughter and I went on this trip, we walked on the beach and watched the sun over the ocean. We were taking pictures, and this lady we didn't know stopped and asked if we would like for her to take our picture. Thank you, to this lady who made our vacation a little more special. We have a beautiful picture of us on the beach, and a lot of beautiful memories.....my daughter had me up and on the beach every morning before the crowds came out, I had never been on the beach at 6 or 7 am in the morning until I went with her. We had a time we will never forget.....
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7-18-2008 @ 11:20PM
Kathy said..."MAKE-A-WISH FOUNDATION," can help this family through their journey, as can private, corporate and individual donations. Airlines, travel agents, hotels, etc, can contribute, as can talk show hosts make sure that their stay and travel plans are paid for. Perhaps Ronald McDonald House or St Jude's Childrens Hospital can be of help to this family? Celebrities and politicians that make millions or billions,what would it be for them to contribute to citizens of the USA to do what is in the best interest of their child for the short time they'll have together. Afterall, the USA, hosts and pays for immigrants for other countries overseas to bring their deformed or terminally ill child here for treatments and corrective surgery. We can help in this situation, as should their homeland's people. May God Bless this family with Miracles, filled with good health, happiness and peace of mind always.
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7-18-2008 @ 11:16PM
Mandy said...Just my opinion but, she's THREE. She will probably HATE Disney World after about half an hour. What I am sure she would LOVE, is to have her house back, and a yard, and her parents around to play with her. I have total sympathy and empathy for the situation itself, and I am sure these parents are doing what they think is best, so that is all I will say.
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7-18-2008 @ 11:19PM
Lisa said...They do have a website, if you're interested.
caitlinsdream.com
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7-21-2008 @ 7:01PM
Kathy said...I have family members that were told they wouldn't see their teens, and both are now in their 30's. Second opinions, never giving up and spending quality time together, being positive and allowing the children to become independent and enjoy life with family & friends to share in. Miracles do happen, faith, hope and second opinions are options and necessary for the well being of the child.
Yes, it's frightening and understandable that the parents would want to have womderful memories of the time they've shared with their precious child, but even at three years old the child too can tell what her needs would be. My child, did know what was good for the body, and when I did address this with the physician, whom said, children do know their own bodies and are replenishing this. Not to worry if that is what they want to eat, as they know their bodies. Even at such a young age, this little girl can tell them what she would like.
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7-18-2008 @ 11:37PM
Holly said...I lost a daughter 6 years ago. To a disease that only two children have had in Colorado ever. And my daughter was one. I would do anything and everything I could for my daughter but I also have other children and I agree with the post that making memories at home is just as important. I wake up every morning thinking of my daughter. Just because I couldn't afford to up root my life and my children doesn't make me a bad mom. I wish I could. And I think it is a very self less act on their half. Everyones situation is different. Kudos for all three of you.
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7-18-2008 @ 11:37PM
Helen said...My oldest son died after being struck by a car when he was 15. If only I knew he was going to leave this life that early autumn day, I would have showed him this beautiful earth. I thought we had plenty of time left. Now he sees this earth from a different perspective, but I wish we traveled together more.
These parents are definately doing the right thing! Bless them all!
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7-18-2008 @ 11:52PM
Lisa said...I recently chose to give up alot to spend more time with my kids... my children are more important than my relationship surviving. My chilren have bloomed since I started taking trips with them... so they sacrafice their relationship for their child. And some think that is wrong? Wow. I was so shocked to read some of those posts. Obviously you have never been where they are, nor where I have been. People, stop and look at it from all the angles before you make a comment. God Bless, and I hope I stay strong enough to hug my children until the end. this is such a beautiful world, and so many people live in a box... life is about living... not about the next car, a bigger house. Do you also know that the CANCER CURE RATE IN EUROPE IS 95%. America has blinded sooo many of us for too long. Let things go... stop and deal with what is important.
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7-18-2008 @ 11:54PM
Diana said...This is one of those stories you wish places like Disney would read and put the family up in their top resort and cover all the expenses for the family so they have even more money left to make their little girl's life as full of love and happiness as possible!
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7-19-2008 @ 12:03AM
Frances said...I am sure the parents are doing what they believe is best for the child. However, I haven't known of any parents losing a child who think about the life hereafter and the welfare of the soul of the child. I would, personally be instructing my only child in the love of Jesus Christ and about God and His love. It seems these parents who face their terrible loss are always seeking out the Wish project or doing material things that will make them feel good after the child has died. Spending money on a Last Wish or pauperizing themselves to take expensive and tiring trips is frivolous. Travel is extremely hard work for everyone who travels, even when one is waited on hand and foot.
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7-18-2008 @ 11:56PM
Jane said...Um, that's not an ad in the article. That's a photo gallery placed there by the author to illustrate the places this family might take their little girl. If you click on the pictures, it doesn't take you to some website to buy a vacation, just to a photo gallery of travel pictures.
I'll admit that the big headline in the middle makes it look a little odd, but sheesh.
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7-18-2008 @ 11:59PM
mmrobinson6 said...Thank you for sharing your story. It is a great sacrifice to give your life and time and money to your child. Those who are against the idea are not willing to do the same. Think about it. There is a man named Jesus who did the most extreme sacrifice. We should all be thankful there are still a few good people left in the world. I have also sacrificed my life for the life of my wife and daughter that have a terrible disability. I am condemned daily for this decision. But it's alright because God is watching. He knows the intents of the heart. God Bless You!!!
Marcus
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7-19-2008 @ 12:25AM
Connie said...As a single parent to an only child, a son, I can say that I was blessed for 19 years to have him with me until he was killed in a car accident. We lived a normal life, I always thought I would be the first to go, as a parent we all do. The thought of your child dying before you is just unimaginable! Every day we had together was wonderful, now not without it's problems, especially the early teen years. But I can honestly say he is my best friend and was my greatest fan and I was his. Love is the binding key for life. I did spoil him and he even told me the night before he died that he would not spoil his children as much as I had spoiled him. He was a great young man, going to college, following my chosen profession. He was loving, caring and funny. I am blessed that he knew Jesus Christ as his savior. So, I know that I will be with him again. My heart bleeds for these parents along with all others that face or have faced the death of a child. There is a wonderful group call Compassionate Friends especially there for parents and siblings that can really help deal with the severe pain of losing a child. God bless all of you.
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7-19-2008 @ 12:27AM
marie said...The story probably made headlines because its such a rare disease. Their doctor, hospital, researchers, or them told the media. I think it was the best thing to do; Becuase of the unique situation, Disney will probably give them free admittance or cover a substancial amount of costs, as well other amusement/theme parks will step up too. It benefits them so they wont have to spend up ALL of their dwindling stock pile, while the entertainment parks get publicity and tax cuts. It works for everyone involved. KUDOS to you all for having the courage to make that type of dedication to your daughter!
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7-19-2008 @ 12:38AM
Paul said...Who are they pleasing ..themselves or the child. I guess tha african safari is at age 7..come on..Take her to chucky cheeses until she is 6 then to disney..then..NOT on a safari..take her to church..take her to see the 7 wonders..
Not on an adult dream vaction..
Nuff said
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7-19-2008 @ 12:40AM
MemyselfandI said...I think it is wonderful.....as a mother of an only child I cannot imagine for a second how horrifying it must be knowing your child is living on limited time. As for those of you saying that they don't need to be spending such extravagance on the child...that the child only wants time with the parents....you must understand as I am sure I do, that knowing that their child's time is limited....they want her to experience as much joy and wonder as she can possibly experience....as we take our time for granted, and luckily most of us are able to experience these things in our own time. She however is not...and her parents know this...and want to show her the wonders that she may have otherwise never known....I think it is wonderful.
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7-19-2008 @ 12:42AM
Eleanor Peters said...I believe these parent did what they wanted to for their daughter and no one should judge them. We are all different and since you are not in their shoes you really do not know what you would do if this were you. . Who are you to say that their marriage will come unglued after the daughter is gone. If any thing they will be closer and give each other the support they have for doing for their daughter what THEY wanted to. I lost two daughters a year apart and had with them what I wanted and not what other people thought I would or should have. What a wonderfuf mother and father. My condolences to them.
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