Can Kids "Recover" from Autism? Study Says Yes
Fein studied 20 children who were diagnosed -- correctly -- with autism before age 5. Today, they no longer meet the diagnostic standards for autism. Most had long-term behavior treatment after diagnosis, in some cases 30 to 40 hours a week. But here's the catch: The children in the study also had above-average IQs and were diagnosed with relatively mild cases of autism. In addition, they were within the normal range for motor development at age 2, and were able to walk, climb, and hold a pencil, unlike many children diagnosed with autism, who often have both fine and gross motor skills delays.
Fein and her research team are trying to isolate what it was about these kids that made "recovery" possible; they are looking at brain scans as well as trying to identify what traits the "recovered" children have in common. Fein says that the kids in her study "are turning out very normal," at least in the context of neuropsychological exams and verbal and nonverbal tests. Frankly, I am skeptical. Very skeptical. I suspect that rather than "recovering" from autism, these kids outgrew whatever it was that was causing them to be different.
Activist Celeb Parents
Jenny McCarthy and partner Jim Carrey are founders and board members of Generation Rescue, "an international movement of scientists, physicians and parent-volunteers researching the causes and treatments for autism." McCarthy's son Evan is autistic.
Greg Grunberg plays a superhero on TV, but he's a real hero to people with epilepsy. His web site, Talk About It, encourages people to understand what epilepsy is and dispells the myths surrounding the disease.
Grunberg and his wife, Elizabeth Wershow, have three sons; the oldest, Jake, is epileptic. "It's hard to find someone who is going through exactly what you're going through," Grunberg says.
The Material Mom's NGO, Raising Malawi, is "dedicated to bringing an end to the extreme poverty and hardship endured by Malawi's 2 million orphans and vulnerable children." The organization provides at-risk children with food, shelter, clothing, and education -- because not even Madonna can adopt them all.
Golden Globe winner and Irish hottie Colin Farrell's son has Angelman Syndrome, a rare form of cerebral palsey. In 2007, Farrell went public with his story, telling the Irish press that "from day one I felt that he's the way he's meant to be."
Actress and mom Salma Hayek is a breastfeeding advocate -- going so far as to nurse another woman's baby on a recent visit to Africa. "It's like, I don't care if I cry, I don't care if I'm fat, I'm just gonna do it for one more week, one more month," she explains. "Then, when I see how much good it is doing her, I can't stop."
No one expected much of Nicole Richie and Joel Madden as parents, but they've proven all the doubters wrong. The couple, who are expecting their second child, have started the Richie-Madden Children's Foundation to help kids and families in need. That's a nice example to set for daughter Harlow and her new sibling.
Heather Mills is most recently famous for her no-holds-barred divorce from Sir Paul McCartney, but she's also heavily involved with the British campaign No More Landmines, raising funds to clear undetonated landmines, which are particularly dangerous to children.
Like Jenny McCarthy, Dan Marino has an autistic son. The former Miami Dolphins quarterback's Dan Marino Foundation is currently working with the Obama White House to develop policies relevant to disabled people, specifically those with autism and austism spectrum disorders.
In August of 2005, Jim Kelly's son Hunter died of Krabbe disease, an inherited degenerative disorder of the central and peripheral nervous systems. Two years later, Kelly and his wife, Jill, established the Hunter's Hope Foundation, which has raised millions of dollars for research.
Here's why I think that: When my son was three, he was diagnosed with an autism spectrum disorder. Like the parents in the study, we started intensive behavior modification therapy. My son is nearly nine now, and he no longer meets the criteria for autism. Like Leo Lytle, one of the boys in Dr. Fein's study, my son "once made no eye contact ... echoed words said to him and often spun around in circles." But also like Leo, my son is now a bright, successful second grader, who does well in school and plays baseball and begs to have friends come for sleepovers. So I'm familiar with the kind of "recovery" that Dr. Fein saw in her patients.
But he's still not exactly like other kids his age. He's just not autistic, or at least he no longer meets the criteria for that label.
I don't believe, for a moment, that my son "recovered" from autism, the way that kids "recover" from a virus or an injury. Instead, I think that the diagnostic labels for autism disorders have been stretched so far that they now encompass kids like my son, who have other issues that set them apart from their peers. Many of the kids in this particular study, the ones who "recovered," continued to exhibit quirky behaviors -- attention issues and tics and phobias. They are still, somehow, neurologically different from other kids their age.
Dr. Fein acknowledges that the kind of results she saw in this study are "not a realistic expectation for the majority of kids." Critics, she says, argue that kids who "recover" from autism "either ... really weren't autistic to begin with ... or they're still socially odd and obsessive, but they don't exactly meet criteria" for autism. I think the truth lies somewhere in between.
Current autism labels cover everything from profound cases -- children and adults who have no social interaction with the world -- to kids like my son, who are quirky and odd and who struggle socially. To say that some kids will "recover" offers a false hope to families of profoundly autistic children. I am heartened by the part of this study that focuses on what it traits the "recovered" kids share, not because I think this knowledge will help cure other autistic kids, but because it may lead to better diagnostic tools and better labels and, hopefully, better therapies for kids like Leo Lytle and my son, kids who are lagging socially and who struggle to figure out the rules of interpersonal interaction, but who can, with therapy and the right support systems, learn to function -- and succeed -- socially and academically.
Recent Posts
- Reviews: What's New This Week (11/06/2009)
- Jim Carrey's "A Christmas Carol" Creepy in a Good Way (11/06/2009)
- Twitter Follow Friday on ParentDish! (11/06/2009)
- Babies Pick Up Mothers' Accents In The Womb (11/06/2009)
- Recall: Adventure Playsets (11/06/2009)

.jpg)

















Reader Comments (Page 1 of 1)
Eddie Williamson 5-14-2009 @ 7:37AM
Honestly, the medical "profession" concerning psychology and psychiatry has actually evolved from helping people to "diagnosing" as many people as possible with some disorder they label. Like ADD and ADHD, most kids are naturally intelligent and are easily bored with the material at school, and because the teacher feels intellectually threatened by a person much younger than themselves, they say the child should be "tested" for a disorder.
Honestly, I take what the psychological and psychiatric community with much skepticism. I am aware there are people with legitimate disorders, but it is far less than the ratio given by this "profession". Personally, I am a reserved person that prefers to spend time with family rather than going out to some club. According to this medical community, I must have autism and also social anxiety. You see what I mean?
Reply
SKL 5-14-2009 @ 9:58AM
First of all, nobody ever attempted to imply that most kids can recover from autism, so there is no reason an intelligent parent would take this to suggest that their profoundly autistic child might one day wake up and speak normally. That's just dumb.
But what I feel this shows is that it is very worthwhile for parents to pursue aggressive treatment plans, because even kids who don't "recover" (as in cease to be labeled autistic) can still improve their quality of life. They exercise profoundly disabled kids' bodies, not because they think they'll walk again, but to help them to be as healthy as they "can" be. Not to do this would be neglectful. The same holds true of intellectual and social stimulation. The idea that nobody with autism can recover is akin to saying profoundly autistic kids are hopeless cases who can be left to waste away mentally.
This research only confirms what has been accomplished for many decades by people who refuse to accept the idea that autistic = hopeless.
The only reason this isn't being received with enthusiasm is because there is so much resistence to people in the autism community who are willing to try "unconventional" treatment methods that have been successful anecdotally, and which don't have "scientific" backing only because the scientific community refuses to study them objectively. Mainstream science didn't come up with these ideas, therefore they are wrong and must be beaten down. Never mind the cost to autistic children. Scientist egos make me sick.
Reply
cchibihiei86 5-22-2009 @ 9:24AM
okay im one of those few with autism believe it or not but this sort of thing pisses me off. Its not a tragedy like so many people believe to be born with an autism. I was born with a mild auspbergers autism and im actually doing well. sure i have a few oddities like almost no social contact and yet i continually go out and do the things i want to do. I suffered through high school, middle school, and every other grade picked on because I was different and the other students and teachers didnt like that. but now that autism has come to light im suddenly pitied and coddled while being told that im different...hell i've known i was different! My reading average was higher than that of my fellow classmates! I have to live with autism for the remainder of my life...please dont tell me there isn't a cure or that a family is heartbroken that there child has an autism...thats just bullshit because if they are then they arent a good support for that child because family is the only thing that helped me get to where i am today. Im proud to have an autism!
saltboxtherapy 5-18-2009 @ 11:16PM
Just wanted to let the folks with Autism in thier families to know about our therapy. We have been testing with our Salt Boxes and getting very positive results. The children are sleeping through the night and moods are improved throughout the next day.
To learn more about Salt Box Therapy please visit us @
www.saltboxtherapy.com
Reply
saltboxtherapy 5-18-2009 @ 11:21PM
Here's the live link:
http://www.saltboxtherapy.com
Thanks and look forward to helping make a difference in the lives of those who suffer with Autism.
Reply