Hot on HuffPost Parents:
New Turnaround Teacher 'Trying To Get It Right' In Tough School
Anne Woods: A Weekend for Superheroes
British Doctors Leave Preemie to Die
Filed under: In The News
Baby Jayden had the misfortune of being born two days too early.
Even though he was born at 21 weeks and 5 days into his mother's pregnancy, the preemie had a strong heartbeat and was moving his arms and legs upon delivery. But according to his mother in an interview with the Daily Mail, Jayden's doctors refused to offer him medical attention or access to intensive care because little Jayden was just two days shy of the 22-week cutoff date for treating premature babies established in the British national healthcare guidelines.
Unbelievably, the desperate pleas of Jayden's mother, Sarah Capewell, to help her still-breathing child were ignored. Capewell claims that she told the NHS doctor, "If he's born alive you have to help him." According to the story, Capewell said the doctor, following guidelines for British state hospitals for treating premature babies, responded, "No, we don't."
In England babies born prior to 22 weeks are not even legally recognized as babies and therefore are not issued birth certificates; Capewell had to fight to get both a birth and death certificate for her "fetus."
According to the Daily Mail, Capewell's midwife told her, "They won't come and help, sweetie. Make the best of the time you have with him." Indeed. Baby Jayden survived another two hours before he died in his mother's arms.
When Sarah Capewell entered James Paget Hospital in Norfolk, England she was not expecting to deliver a healthy -- or even live -- baby. She had gone into early labor, but was denied injections to try to stop the labor because she was not yet at 22 weeks of gestation. She was also denied steroid injections to help strengthen her baby's lungs for the same reason.
"When I went into labor I was told he would be born dead, disabled and his skin would most likely be peeling off," she recounts on her Web site, Justice for Jayden. Her doctor's advice was for her to treat the birth as a miscarriage, since her child was likely to be stillborn.
But that's not what happened. According Capewell, "he put out his arms and legs and pushed himself over" upon delivery and despite his doctor's grim prediction, his mother writes that "in actual fact [Jayden] was perfect." According to the Daily Mail, the midwife present at delivery described Jayden as a "little fighter."
Amellia Sonja Taylor was also a "little fighter." The 21-week-old Florida preemie who only weighed 10 ounces at birth defied odds and just celebrated her second birthday despite her doctors' pessimistic prognosis for survival.
So did Heather Pope. Though she was 23 weeks old, she was only 1.5 pounds and was given a mere 10 percent chance of survival. Heather's mother told the BBC that, "The doctors initially told us they would not do anything, but we insisted they at least try, and thankfully they came round." Heather is now a healthy and happy grade-schooler.
Sadly, Jayden Capewell was never given the chance to prove his doctors wrong. He was treated as a number, not a patient. And now the mother is asking why and waging a campaign to change England's national guidelines.
But Capewell is discovering that her noble crusade is tied up in her nation's ugly abortion politics. In England, there is genuine concern that lowering the viability age of a fetus would trigger another national debate over abortion limits as it did in 1990 when scientific evidence of fetus viability outside of the womb was the reason politicians lowered abortion limits from 28 to 24 weeks.
The good news for pro-lifers, like myself, is that if viability remains a benchmark for public acceptance of abortion, science is on our side. If only the battle to change Britain's guidelines didn't come at the expense of Jayden's life.
Even though he was born at 21 weeks and 5 days into his mother's pregnancy, the preemie had a strong heartbeat and was moving his arms and legs upon delivery. But according to his mother in an interview with the Daily Mail, Jayden's doctors refused to offer him medical attention or access to intensive care because little Jayden was just two days shy of the 22-week cutoff date for treating premature babies established in the British national healthcare guidelines.
Unbelievably, the desperate pleas of Jayden's mother, Sarah Capewell, to help her still-breathing child were ignored. Capewell claims that she told the NHS doctor, "If he's born alive you have to help him." According to the story, Capewell said the doctor, following guidelines for British state hospitals for treating premature babies, responded, "No, we don't."
In England babies born prior to 22 weeks are not even legally recognized as babies and therefore are not issued birth certificates; Capewell had to fight to get both a birth and death certificate for her "fetus."
According to the Daily Mail, Capewell's midwife told her, "They won't come and help, sweetie. Make the best of the time you have with him." Indeed. Baby Jayden survived another two hours before he died in his mother's arms.
When Sarah Capewell entered James Paget Hospital in Norfolk, England she was not expecting to deliver a healthy -- or even live -- baby. She had gone into early labor, but was denied injections to try to stop the labor because she was not yet at 22 weeks of gestation. She was also denied steroid injections to help strengthen her baby's lungs for the same reason.
"When I went into labor I was told he would be born dead, disabled and his skin would most likely be peeling off," she recounts on her Web site, Justice for Jayden. Her doctor's advice was for her to treat the birth as a miscarriage, since her child was likely to be stillborn.
But that's not what happened. According Capewell, "he put out his arms and legs and pushed himself over" upon delivery and despite his doctor's grim prediction, his mother writes that "in actual fact [Jayden] was perfect." According to the Daily Mail, the midwife present at delivery described Jayden as a "little fighter."
Amellia Sonja Taylor was also a "little fighter." The 21-week-old Florida preemie who only weighed 10 ounces at birth defied odds and just celebrated her second birthday despite her doctors' pessimistic prognosis for survival.
So did Heather Pope. Though she was 23 weeks old, she was only 1.5 pounds and was given a mere 10 percent chance of survival. Heather's mother told the BBC that, "The doctors initially told us they would not do anything, but we insisted they at least try, and thankfully they came round." Heather is now a healthy and happy grade-schooler.
Sadly, Jayden Capewell was never given the chance to prove his doctors wrong. He was treated as a number, not a patient. And now the mother is asking why and waging a campaign to change England's national guidelines.
But Capewell is discovering that her noble crusade is tied up in her nation's ugly abortion politics. In England, there is genuine concern that lowering the viability age of a fetus would trigger another national debate over abortion limits as it did in 1990 when scientific evidence of fetus viability outside of the womb was the reason politicians lowered abortion limits from 28 to 24 weeks.
The good news for pro-lifers, like myself, is that if viability remains a benchmark for public acceptance of abortion, science is on our side. If only the battle to change Britain's guidelines didn't come at the expense of Jayden's life.












ReaderComments (Page 2 of 5)
9-21-2009 @ 5:09AM
rememberfdnypd said...This wasn't a case of *resuscitating* a preemie infant...this infant was alive, moving & conscious & they did NOTHING, not even try to make the little one's few hours of life more comfortable apparently. That is cruelty.
9-21-2009 @ 9:18PM
Shelley said...WTF are you saying? This is the reason I have NO faith in doctors and nurses. Do you sleep at night? How can people in your profession take an oath to SAVE lives when one so young matters little?
Did he not take a breath? What if it were YOUR child? Or grandchild? You just suck.
9-24-2009 @ 12:50PM
Natalie said...I was born three months early! and I survived, and I am healthy.. I am 26 years old with mild asthma. Which is my only health fault. ALL CHILDREN should be saved on request, that is what we have health insurance for! If the child's brain is not functioning then that is a different story.
9-16-2009 @ 1:08AM
dtipson said..."Any child born alive deserves a chance."
Would you really still say this if you knew that the "chance" involves all sorts of painful interventions that in the vast majority of cases simply prolong suffering longer (or even no longer at all: just far more painfully), all with the same grim result? Can you really so glibly suggest that such measures be undertaken as a matter of practice, knowing what they really will entail?
Listen to the NICU nurse. She knows what these preemies, and their families, would have to go through if we enacted such measures.
http://thatshallowfellow.wordpress.com/2009/09/15/saving-preemies-why-healthcare-heroism-can-be-hell/
Reply
9-21-2009 @ 9:02AM
dtipson said..."What you say happens to some but certainly not all preemies."
The question is not "all preemies," but ones tragically born before those dates. If they are born too soon (and that isn't judged _simply_ by weeks: doctors look at things like organ development) then, yes, we're pretty much talking about nearly all of them. The ones that live at all are very much the exceptions, not the rules, and most of those few end up with such severe damage that they never really develop or recover from it.
We do not endlessly shock flatlines. Again: there is a thing called futile care, and its generally not simply a lot of work to provide it: it's UNETHICAL to provide it, for a whole host of reasons.
"What if you develop health problems in your old age, shall we simply euthanize you?"
There is a HUGE difference between euthanasia (actually outright killing someone) and keeping someone alive artificially when it's long past what their body can endure on its own anymore. We have the technology to keep a heart beating and lungs pumping almost indefinitely long past when even the brain gives out and we are only getting better at this. That doesn't mean that we should, or that this would improve anyone's life. That's a mockery of life, not an enhancement of it.
9-21-2009 @ 10:31AM
pksale said...To answer your question, yes, I would still prefer to try. As a nurse and mother of identical twin girls born three months premature, I have seen first hand, both personally and professionally, how miraculous these children can be. The babies do literally "fight for their lives" but I have seen the smallest children leave the NICU in perfect health while watching full term infants die. EVERY CHILD deserves a chance at life. As health care professionals it is our job to protect life as best we can, not play God and decide who lives and who dies.
By the way, my daughters are now twelve years old and are not only happy, "normal" preteens but they exceed their peers on every endeavor they undertake. No one knew what to expect when they were born but I am so thankful that the doctors and nurses who cared for them for 5 months in that NICU gave them every possible chance. Now I could not imagine what life would be like without them.
9-29-2009 @ 9:05AM
buttercup7764 said...Are you suggesting nothing being done was ok? Even if the doctor followed his oath and the baby died, at least the mom would not have to watch her baby die without intervention,. I was born 7 weeks premature. 3 1/2 lbs. Never on a ventilator, only warming bed. Fit in a shoebox and my mom bought clothes from a doll store. I am 45y.o. now and back then, most did die.I was meant to be. We have the resources now to give good quality of life to babies.We have seen babies born even earlier grow up ok. Even if they have disabilities, who's choice is it to care for and love the child? The parents! The doctor had no right to determine the child would die anyway without trying any intervention.
10-02-2009 @ 11:25PM
Betty said...None of us knows the suffering life will bring to us. To deny medical care to a child who is born alive and breathing is to play God. To deny medical care to any human because they might have to endure suffering in life is ludicrous. Then we should all be killed as soon as we are born, because we will all endure some form of suffering in this life. Yes, obviously, a preemie stands a good chance of more physical suffering than a child born at term, but who are we to decide that that child's life - even amidst the suffering - is not of value. We all understand that there is a limit to what is live saving techniques and what is experimentation. That is why it is so important to have people in our lives, like a good priest or person who is strong in their faith and teachings of the church, to advise us.
Is Hitler so far in our past that we have forgotten the evil in choosing who is to live and who is to die based on their contribution to society?
9-16-2009 @ 9:41AM
Emily said...If the British government is paying the bill, then certainly the government has to make the decision based on the cost, and paying for preemies is very expensive. This isn't uncommon - most countries that have a one-payor system have cut-offs for saving premature babies. If a private insurance company decided not to pay for preemies, nobody would buy their policies. If the government chooses not to, and it is the only option, then that's the way it is.
Reply
10-04-2009 @ 3:05AM
Megan said...My husband is British and I have had personal experience with the NHS. 10% of your paycheck is taken by the government to fund the NHS. That's on top of regular income tax! My husband hasn't been to the doctor in two years, yet he has paid plenty to the NHS, and it's not an option whether or not to pay. So Emily, it is incorrect for you to say that if the government is paying for it, then they get to decide. They don't pay for most of it, the taxpayers do! The people should get to make the calls! This is why I'm not having children until we move back to the US.
9-17-2009 @ 9:10AM
Liza said...People don't like to accept the fact that people die. There is nothing you can do. Death is coming no matter what for every living being. It is a tragedy when babies are born too soon. It's horrible. The tragedy is for the living. It was a blessing that the doctors knew not to torture that soul.
Reply
9-18-2009 @ 7:31AM
Sandyone said...Liza,
Are you saying that leaving the baby to drown in his own fluids wasn't torture? That seems like a pretty crappy way to die.
9-17-2009 @ 9:23AM
Rhonda said...I have a friend that gave birth at 4 days before the 23d week. Brianna was tiny, but like some of these other babies she was a fighter. She has blessed the lives of everyone who comes in contact with her, especially me! She is a healthy, happy 2 year old who deserves to be here! This is absolutely something that should be on a case-by-case basis. God put these babies on this earth for a reason. If you let one die without doing anything to help, could that be the person who could have cured cancer when they were grown? Now you will never know......
Reply
9-17-2009 @ 9:49AM
Emily said...Rhonda said "If you let one die without doing anything to help, could that be the person who could have cured cancer when they were grown? Now you will never know......"
Of course, that could also be the person who grows up to be a serial killer or child molester.
9-18-2009 @ 7:59AM
Raquel said...It should have been known to the Dr.'s that all weeks are approximate! She could have met the 2 extra days needed! This is very disturbing. It should read that any baby born alive deserves a chance b/c it's not hopeless. The 10 1/2 ounce baby survived, Jayden could have too! I am so glad I life in the USA and I pray that Obama doesn't mess with how preemies are handled today!
Reply
9-18-2009 @ 1:09PM
Kristin said...What is wrong with you people?!?!? Especially the NICU nurse?? You should know more than anyone that every birth is different and there should NOT be a date or time 'limit' for any miracle of birth. If it weren't for the amazing Dr's I had when I delivered my daughter she would not be here today. She was a "micro-preemie" and was only 1 1/2 lbs. She wasn't given the best odds and now she is a happy, healthy, smart, 3 yr old. You should not be in healthcare and your licence should be revoked!
Reply
9-18-2009 @ 10:07PM
Reality Rounds said...Kristen,
I have dedicated my life to caring for infants and I feel it is an honor and a blessing to be able to use my skills so the most fragile and vulnerable can survive. Stories such as you told of your 3 year old daughter make me very happy that my profession made a difference in your life. I truly mean this. But honestly Kristen, there is a limit to what technology can do. A one and a half pound baby is huge to me, when compared to the micro-preemies I wrote about. It is because I have a respect for human life that I do not believe infant's born at any gestational age should be resuscitated. Women come in to Labor and Delivery all the time who deliver at 17, 18, 19 weeks. Should we resuscitate at that gestational age? What do you think, in your heart and soul, should be done?
9-18-2009 @ 9:44AM
Boston Girl said...I worked as a Respiratory Therapist at a Children's Hospital and I have NEVER heard of any child being denied care, regardless of age. I, myself treated a BABY (not fetus) born less than 22 weeks. Okay, it's a difficult process, a hard one for parents and staff should the baby not make it and FYI- the baby DID make it. However, to deny help and treatment would be against everything we believe in as health care professionals. No doctor I have ever worked with would allow a child to die without at least trying to help them, give them a chance. I don't know what happens overseas, this is a heartbreaking story.
Reply
9-18-2009 @ 9:54AM
Lisa said...Reading that broke my heart! I gave birth to a premature baby at 24 weeks. He was 1lb 13oz. The doctors said that he may not live, but he was a fighter! Today Austin is a healthy 10yr boy.He is my proof that anything is possible and miracles happen. I thank god for him everyday! I believe everyone deserves a chance at life...and then it's in gods hands. My heart and prayers goes out to the mother and family.
Reply
9-18-2009 @ 11:37AM
Karenlj said...When we start to play God, that is when we start to fall. If a child is born alive and they are a child once they enter this world spirit and all, then all means should be made to protect and enhance the life of that child.We do not have the right to play God and decide who lives and who dies. If we do then we are descending not ascending and it won't get better just a whole lot worse.
My next door neighbor delivered twins at 20 weeks.Neither weighed a pound. One boy and one girl. The boy eventually succumbed but the girl thrived and had her first birthday last July. She is doing just great. Who has the right to say that little girl shouldn't be here.NOBODY!
I wonder what that doctor would have done had that been his wife and his child. He needs to get out of the health care system as he has already been guilty on" FIRST DO NO HARM. " When it and if it ever comes to this in America, I pray I'm no longer here.
Reply