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Opinion: Is Tweeting Our Family Tragedies the New Normal?
Filed under: Opinions
There is a little girl named Layla Grace who died yesterday. She had cancer, and I followed this 2-year-old's downward spiral from the time she was diagnosed with neuroblastoma 10 months ago.
Layla Grace was not my neighbor. She was not my child's nursery-school classmate nor the daughter of a friend. She was not a member of my church or even a resident of my community. I do not know Layla Grace -- or her parents -- but her passing weighs on my mind nonetheless.
I know Layla Grace through Twitter. The child's parents were tweeting and continue to tweet about their loss, and blog about it as well. Some say using social media to reach out to other moms and dads during times of tragedy is a way to connect us all, across the usual dividing lines of race, class, gender, sexual orientation and geography.
I used to think so, too.

In fact, I wrote a piece on the topic last year, after a California couple shared their grief at the passing of their 17-month-old daughter and Twitter mobilized around them. They had been raising money for the March of Dimes at the time of the child's death -- she was born 11 weeks premature -- and by the time #Maddie was trending, which is the way you find a topic on Twitter, they raised more than $100,000 through donations from, literally, virtual strangers.
At the time, I called Twitter the modern version of a back porch, where friends and community members gathered with casseroles and comfort when tragedy struck. I believed that then, and in Maddie's case, it is still an accurate metaphor.
Now I wonder just how much tragedy we can absorb before we are immune to it. Layla Grace's journey to death, and her parents' overwhelming grief, is almost unreal. It feels like a play, or a TV movie of the week. My fear is that we will cross the line from compassion to consumption.

Layla Grace's dire condition attracted the attention of celebrities like Ryan Seacrest, Paris Hilton and Kim Kardashian, all of whom helped the 2-year-old's mom in her effort to raise awareness of the child's condition -- stage four neuroblastoma, a cancer that is common in infancy and childhood. Their involvement in the story made it ever more surreal, and more and more like the plight of a fictional character.
I fear we are in danger of grief and loss becoming so abstract that it seems more like entertainment than tragedy. While there's no doubt that most people who reach out to families in need are genuine in their empathy and compassion, there is another side to that coin. In a sickening way, it feels almost trendy to glom on to what were once the intimate moments of tragedy borne only by families and their closest friends.That is one trend I will let pass me by.
I can't judge the parents of these children for needing to share their sadness. I cannot and will not pretend to understand the heart and mind of someone whose child has died or is dying. That is not my right.

Maybe I'm crazy. Maybe tweeting our family tragedies is the new normal, the Web 2.0 version of gathering around those who are suffering. What I do know is that I need to turn away from the screen when I see this kind of pain and agony scrolling by. Not because my heart is hardened, but because I fear it may become so.
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ReaderComments (Page 1 of 8)
3-10-2010 @ 8:03PM
Maggie said...I'm sorry, but I completely disagree. My heart has been so touched by Layla Grace and the Marsh family. I have cried and cried my eyes out, prayed more intensely than ever and felt connected to a people I've never met in person for almost a year now. We all prayed so hard for Layla's miracle-- and it did come, though not as we had hoped. Layla's miracle is the Faith and community of love and supporters she created, a group of people who felt so touched and moved by this little one and her family's honest account of her brave struggle with a horrible disease. So I do not think that this has hardened our hearts, but instead opened them to new levels-- thousands of people across the world comment every minute about how their hearts are breaking for sweet Layla and her family. We are connected as never before.
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3-11-2010 @ 11:01AM
Tracy said...I agree 100% with Maggie. First of all - the family initially started the twitter feed to keep friends and family updated. I'm not sure how twitter works but the parents have expressed surprise at the number of followers.
I am the mother of three. I would need to find some reason to grasp the losing of a child. The reason, as expressed by the parents, is to raise awareness about this disease. Her life had a purpose - and is not a waste of a child. She had lesson to teach. Twitter allowed her a venue to teach this lesson.
While I grieve for this child, whom I never met - I hold my own children a little more tightly. I am honored to have read and followed her journey.
3-11-2010 @ 3:08PM
Christina said...Tracy -- so any other child who dies without a Twitter page following their struggle has no purpose in life?
3-11-2010 @ 4:31PM
Ryan said...Staci, what is wrong with you!? Why in gods name are you putting an ad for hemmeroid cream in the comments area about such an overwhelming and sad story! You need to grow a heart FAST! Put your ridiculous ads in another story, and if your going to comment, put a little thought into it, dont be so thoughtless and inconsiderate.
3-11-2010 @ 6:11PM
Lindsay said...This article is sick. People twitter tragedy just as much as they twitter everything else in their lives. And, people receive love and support more so during difficult times. Think about the last time you called, say, a cousin? Now, what if your Aunt died? Wouldn't you reach out? YES! This is the same thing!
How dare you say the passing of this little girls life is a trend. I am all for it if this "trend" helps the family grieve and points more people to the Lord!
3-11-2010 @ 4:54PM
lily said...I think it was a good thing to do...twittering about her childs struggle. You have no idea who it could help . Maybe it could help people discover symptoms in their own kids or help some mother cope with similar circumstances. It doesnt harden us but maybe teaches us compassion for our fellow human who is struggling. I was diagnosed as having stage 4 ovarian cancer last september and i strted a blog about my journey. I cant tell you how many people have written me to say thank you for sharing because its given them so much to think about with their own illness or the illness of some one close. Dont underestemate the power of words and sharing. It can do alot of good.
3-11-2010 @ 5:25PM
tom said...cry for me to. i dont have money to feed myself, im diabetic. im 52 and could die at any moment, if someone dont shoot me first. NOT
3-12-2010 @ 11:05AM
Angela said...There are several real reasons Layla Grace has touched so many.
1. She's a child, innocent and pure enduring a very short life of suffering
2. Maybe our world is searching for a little more compassion and fellowship than what the current world is offering us. We have moved from the family phase it to, "it's all about me". This tiny creature of God's brought people together like they were meant to be...relying on others and sharing in the good and bad times.
What wrong with a little compassion and humanity. It's amazing that human nature adjusted to the secluded world of technology.
Do we have the right to judge them like that? Let them grieve how they wish, it's nothing more than an open diary which is commonly used during a proper grieving process and widely recommended by counselors.
Also, the author conveniently left out about the parents sharing in the joys of their child.
I can't believe someone would write this, especially a day after a 2 year old died of cancer. Geez...
3-11-2010 @ 6:05PM
Heidi Helene Christensen said...Sometimes when you hurt SO BAD it helps to "talk" to people about it - even strangers!
3-11-2010 @ 7:23PM
Cate Tuten said...Maggie, I so agree with you. Years ago Micheal Jackson had a "little hit" called WE ARE THE WORLD. In fact, it is now being redone. Isn't this public knowledge of this sweet little girl exactly what the song is about. We are the world now due to technology. And I am so very thankful the air waves can be filled with compassion and prayers and concern for a little girl named Layla Grace. My gosh, our air waves are so filled with hate and violence and bad news. The fact that so many peopled cared about her is good news. And that is something worth singing about. WE ARE THE WORLD, indeed!
3-11-2010 @ 8:21PM
Anne said...I think Maggie is right. They have their right to tell their daughter's story to the world. I see your point, but I don't think it's like a play or a movie. It is a real life tragedy. This calls attention to the newest generation who is using twitter, facebook, ect. This could raise childhood cancer awarness, which needs more awarness. I was very moved by Layla Grace's story, and now I've even been able to send the family a card. And just think, I'm pretty sure all 48,100 people who are "following" her story are wishing their family well. That's a lot of support needed in a very difficult time in their life. If they choose for Layla's story to be heard by all and raise awarness of childhood cancer, then so be it. Also, let's see the fact that we all need to have this family in our thoughts and prayers. My condolences to the family.
3-11-2010 @ 12:36PM
jb said...I recently read an article discussing the human response to tragedy; namely individual tragedy vs mass tragedy. It has been proven that humans are more likely to respond to an individual tragedy than a mass tragedy. So you will see, through a tragedy like Layla Grace, huge numbers of people giving generously to help, while they stand immobile in the face of tragedies like the earthquake in Haiti. The human mind is not adequately able to process a mass tragedy, but it extremely generous to an individual tragedy.
These parents were able to voice their pain, share with others, and raise money to help find a cure so that other children don't experience this. What could possibly be wrong with this?
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3-11-2010 @ 2:45PM
Laurie said...Maybe, there are those of us that would like to "help" in our own back yard. Our government took care of Haiti, with what, one billion dollars? Not to mention a telethon that aired on what, 15 different channels? This family has mounting medical bills...and now funeral bill. Given a choice of where to spend my hard-earned funds....it will go to someone local, who doesn't have a government backing them.
3-11-2010 @ 4:28PM
Phil said...The human mind is not adequately able to process a mass tragedy
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I disagree, The human mind can process mass tragedy i'm an EMT by profession with more than 30 years in. I've seen it all. earthquakes, plane crashes and yes 9/11 and more. Ive had nightmares since 911 and i still refuse to discuss it with anyone. a new to the EMS person might not understand it but with my years in, believe me i do
3-11-2010 @ 5:00PM
Rachel said...I read a similar article; I believe it was in The Week.
This is a very saddening story. Although I don't like Twitter for certain reasons, I do think this was a good use of it.
I hope this little girl finds peace, wherever she goes in heaven.
3-11-2010 @ 2:24PM
Natalie said...I must say it could possibly be dangerous. But just last week in our church youth group my friends and classmates and the church-going teens bowed our heads in prayer for a little girl I've never met. Yet, my heart was torn and I felt like I knew her. We also prayed for another little girl - five year old Sarah Hayes. She is the sweetest bundle of pure happiness, diagnosed with an agressive cancer. I do know Sarah. She entered kindergarden at my tiny private Christain school this year. I've gone to school with her older sisters. Her mother taught me science in 5th grade. That was the year little Sarah was born. Her mom took pregnancy leave half-way through the year. Her story is on the internet. Facebook...blog...I'm not entirely sure because I have no need to tune into it being that I'm right here. But to know that thousands of Christians across the globe are praying for this strawberry blonde beauty of a little girl, that makes my heart feel at peace. She went into surgery last week, and it went five hours faster than expected. They didn't think she'd be able to talk for a long while. She said her first words on Monday. I know that people are pulling for little Sarah, just like we were pulling for Layla. Thats the beauty of it. I know God heard my prayers, but I also believe he heard those of "virtual strangers" all across the globe.
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3-11-2010 @ 3:29PM
Megan said...I have followed Layla and her amazing family since day one and I completely disagree with your article. There is ZERO harm in sharing your journey whether triumphant or tragic with the world. IMO it helps to heal what you are going through. It allows you to be open and honest and not only with yourself but with the whole world.
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3-11-2010 @ 2:26PM
Penny Rhomberg said...We are evolving a new normal. In an Eleanor Rigby society, disconnected and lacking in community, these are the things that bind us in our humanity. "Ask not for whom the bell tolls..." means that we see our connectedness, our human frailties, in these new media. Don't lament it. Be grateful that we can still dredge up the least bit of compassion and empathy.
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3-11-2010 @ 2:28PM
Danielle Stoe said...I don't think that it was necessarily meant that we shouldn't tweet about it or people should keep things to themselves but that if we see it everyday and in every situation we will be numb to the fact that there is tragedy out there to this extent. Not to mention that unfortunately there are going to be scammers, it just opens a whole new nutshell for people to try and rip other people off with a "fake" problem. So while I don't agree a 100% with this article I see where they are coming from.
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3-11-2010 @ 5:14PM
Kyla said...I agree, Danielle. Any one who finds it helpful should certainly continue (though I personally cannot see myself "tweeting" about the death of someone precious to me; it seems diminishing to me, but that's my choice and I have no right to tell anyone else not to). But it does have some risks; fraud, desensitization (yes, this little girl tears at the heart now, but what about the 2,764th "Layla" down the line?), and just plain saturation. I suspect that, over time, they'll find some psychological problems with "tweeting" these cases. Do they really assist with the process of grieving, or just delay it because while you're answering 6,000 tweets about it you don't have to really process it? I know when my parents died, I didn't have time to really process it while I was busy making and answering phone calls, cards, etc. Is there an emotional crash a few days or weeks later when all the sympathetic (or pseudosympathetic) tweeting stops and all those strangers go away or move on to the next sad tale? After that, what kind of emotional stress comes from realizing that your child is still gone, and now so's your entire, total-strangers-who-never-knew-my-child sort-of-support system?