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Opinion: Is Tweeting Our Family Tragedies the New Normal?
Filed under: Opinions
There is a little girl named Layla Grace who died yesterday. She had cancer, and I followed this 2-year-old's downward spiral from the time she was diagnosed with neuroblastoma 10 months ago.
Layla Grace was not my neighbor. She was not my child's nursery-school classmate nor the daughter of a friend. She was not a member of my church or even a resident of my community. I do not know Layla Grace -- or her parents -- but her passing weighs on my mind nonetheless.
I know Layla Grace through Twitter. The child's parents were tweeting and continue to tweet about their loss, and blog about it as well. Some say using social media to reach out to other moms and dads during times of tragedy is a way to connect us all, across the usual dividing lines of race, class, gender, sexual orientation and geography.
I used to think so, too.

In fact, I wrote a piece on the topic last year, after a California couple shared their grief at the passing of their 17-month-old daughter and Twitter mobilized around them. They had been raising money for the March of Dimes at the time of the child's death -- she was born 11 weeks premature -- and by the time #Maddie was trending, which is the way you find a topic on Twitter, they raised more than $100,000 through donations from, literally, virtual strangers.
At the time, I called Twitter the modern version of a back porch, where friends and community members gathered with casseroles and comfort when tragedy struck. I believed that then, and in Maddie's case, it is still an accurate metaphor.
Now I wonder just how much tragedy we can absorb before we are immune to it. Layla Grace's journey to death, and her parents' overwhelming grief, is almost unreal. It feels like a play, or a TV movie of the week. My fear is that we will cross the line from compassion to consumption.

Layla Grace's dire condition attracted the attention of celebrities like Ryan Seacrest, Paris Hilton and Kim Kardashian, all of whom helped the 2-year-old's mom in her effort to raise awareness of the child's condition -- stage four neuroblastoma, a cancer that is common in infancy and childhood. Their involvement in the story made it ever more surreal, and more and more like the plight of a fictional character.
I fear we are in danger of grief and loss becoming so abstract that it seems more like entertainment than tragedy. While there's no doubt that most people who reach out to families in need are genuine in their empathy and compassion, there is another side to that coin. In a sickening way, it feels almost trendy to glom on to what were once the intimate moments of tragedy borne only by families and their closest friends.That is one trend I will let pass me by.
I can't judge the parents of these children for needing to share their sadness. I cannot and will not pretend to understand the heart and mind of someone whose child has died or is dying. That is not my right.

Maybe I'm crazy. Maybe tweeting our family tragedies is the new normal, the Web 2.0 version of gathering around those who are suffering. What I do know is that I need to turn away from the screen when I see this kind of pain and agony scrolling by. Not because my heart is hardened, but because I fear it may become so.












ReaderComments (Page 5 of 8)
3-12-2010 @ 5:10PM
bmf said...I'm curious how many of these people that say they would never turn to the internet during a tragedy, actually will if something happens. I'm curious how many will be scrounging up prayers when they really need them. If I come across their tragedy through their internet post, I will read them and I will pray for them for as long as they need prayers. A previous poster also said that these followers should use their time to do things in their community. Well, following this family made me realize there are people in my own backyard that need help, and it has inspired me to help them. I don't think I have ever really felt such a desire to help people now. I personally never donated any money to this family because I can not spare money at this time. I would have if possible. I feel like I paid them with my prayers, and I'm pretty confident they are just fine with that. They have also announced they are switching to a foundation to aid in research. So, for those of you that don't want to pay another person's bills don't have to and this family is not expecting you to. Yes, there will be scammers, but if someone feels the need to donate money, then they need to do their research before signing the check or pressing send on the computer. What hardens my heart is all of the negative people that have felt the need to post to this story. I can't imagine living a life full of negativity. I believe I am the type of person to always keep a soft heart for anyone that needs some compassion. I will also add that this family had over 60,000 followers and I think they prove they are very kind people since they didn't strike up a boycott against AOL for publishing something like this so soon after this girl's death. Everyone is entitled to their opinion, but timing could have been much better.
3-11-2010 @ 4:30PM
roberta said...i really dont know how you can even post or write about something you know nothing about,if you are that bored join a group maybe to learn about what you are trying to preach about,people like you is why the world is so messed up because YOU DONT KNOW until you have been thru something such as loosing a child please shut your mouth
gracias.......
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3-11-2010 @ 5:12PM
jenn said...ok, so unless I have experienced indescribable grief, I have no opinion? you need to understand that everyone has a story and you should take your own advice.
gracias...................
3-11-2010 @ 4:27PM
Katie said...I have lost a child and I can tell you there is no pain like it. However these parents dealt with the tragedy is their business. You have no right to say what is right or wrong with the way they handled her illness and her demise.
My best friend lost her son 2 years after I lost mine. She told me people were giving her grief because she took pictures of her son in his casket. While I couldn't even imagine doing that, (I wanted to remember my son in other ways), it wasn't my place to tell her how to grieve! Everyone handles stress and death in their own ways. Who are you to tell anyone else how to grieve.
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3-11-2010 @ 4:29PM
Kirstin said...I live in Iowa and her family lived in Texas...if it had not been for the blog I would not have prayed several times a day, everyday for Layla or her family. I will continue to pray that her family is helped down this long, hard path they now face.
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3-11-2010 @ 4:30PM
alysse said...Online interaction is a great way to keep close friends and relatives up to date on the status of the one that is sick. It is also cathartic for the ones that are dealing with it. It is very lonesome in many ways. But there is a warning here, mainly it does bring awareness, but there are many who don't have someone tweeting, blogging etc about their struggle-right where you live. I do believe in helping those close to home first. Just don't forget to look around where you are.
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3-11-2010 @ 4:29PM
kristina said...i just now heard about this story i am touched there are people in my church who always pray for people who are grieving over loss i am so sorry and i hope the family is comforted
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3-11-2010 @ 4:41PM
Carol said...Some people need to share and some people just can't do that. My daughter had a very rare for of cancer and it was touch and go for a year. It was the most heartbeaking time in my life and the sharing I did with people I didn't know, and the praying that came from all that got me though. My daughter is alive and we feel so lucky but I know all the prayers that went up to God had a big part in her being alive today. I have written a book about that year and I may try and have it published to help other people or just have it published for my family to have it to pass down from generation to generation. I wrote every night to save myself and my sanity.
I'm so sorry this story ended the way it has but Layla's parents can be so proud of their beautiful child and she will make a change in this world.
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3-11-2010 @ 4:43PM
Sharon said...I do not Twitter, but this story brought tears to my eyes. My biggest fear about this sort of communication, though, and I don't mean to sound so cynical, but think about how many times we, the public have been duped in the past with "sad, tragic" stories, is that there's going to come the time when someone, for whatever perverse reason, is going to use this medium to make up tragic studies that are just simply not true. How would we ever know? It wouldn't surprise me if some people even would want to send money to these families to help them through during their time of "tragedy". However, in this age of electronic, not personal, communication, how are we ever to be completely certain that the events we are reading about are real, or even the people supposedly involved in them actually exist? Where's there's opportunity, there will always be unscrupulous people eager to jump in and take advantage of other people's good nature and eagerness to help in any way they can. May little Layla truly being "playing with the angels" and may God bless her little heart and be with her parents and other loved ones.
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3-11-2010 @ 8:43PM
genny said...a few years ago I was losing my great aunt and great uncle, they lived in Arizona and I live in Ohio, if it was not for Facebook, twitter, and Myspace updates on how they were doing i would have never know. I think tweeting or updating Facebook and Myspace is a great way to let family and friends that are out of state know how the person that is sick is doing
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3-11-2010 @ 4:55PM
TB said...I disagree. Twitter and other media help families and friends stay in touch, without calling (which is what people use to do). It allows the family privacy to tweet when they want to. I imagine it also helps them get through the tough times during the illness and after the child/loved one has passed on. One of the biggest problems a person deals with in this type situation is depression. Having so many people checking on you has to be helpful.
I guess if you ahve never lost a child you can't understand.
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3-11-2010 @ 5:12PM
Nancy said...Layla is playing with her Angels, my deepest symphany goes out to her family and friends. Who are those to judge how a family grieves or wants to bring attention to thier love ones illnesses or misfortunes. I have a 9 yr. old granddaughter that has Rett Syndrome, a disorder that has robbed her of all her skills to talk, walk, leaves her with almost daily seizures, yet she manages a smile to let us know that she knows we love and care for her...do I want everyone to know...you bet your sweet a.. I do. I tried to get help to buy a used wheelchair equiped Van for her for $1600.00 and could not get any help, so if someone succeeds getting the help they need or the attention they need .God Bless them.... Becca's Nana
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3-11-2010 @ 5:06PM
Lois said...We've all heard stories of awful, callous people who shouted, "Jump! Jump!" to someone on top of a building. Unfortunately, there were probably a FEW people like that following this child's decline for the wrong reasons. However, most following likely felt true sympathy for her and her family. People respond differently to tragedy and how you tend to respond should help you decide what to watch and listen to. If a situation like this softens your heart, why not follow it? Maybe you can be one to help or offer an ear or a shoulder! BUT if you feel a concern as our writer above, you should have the wisdom to stop following. As she states: "Not because my heart is hardened, but because I fear it may become so."
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3-12-2010 @ 11:24AM
reed said...i have not lost a child, but a grandchild to ms in 07. karissa was born in 05 with this disease. the hardest part was two fold. watching my granddaughter pass and in a sense watching those around me grieve .my heart and prayers go out to little Layla and her family.to all, keep the little close to your heart.
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3-11-2010 @ 5:05PM
Christine said...As a mother of three children and the mother of a child (Christopher (9) ) that earned a pair of angel wings way to soon. He also had brain cancer (Ependymoma) (another form of cancer identified in children). Who is anyone to judge or point a finger at a family that is struggling daily, with a child that is sick. There are many ways to keep family and friends updated on our daily ups/downs and basically....they want to know. We had a careingbridge site. Loosing a child is the most life changing experience a mother/father and family can go through. OUr lives are forever changed....Instead of spending your energy, wondering if the parents are doing the RIGHT thing, spend your energy getting the word out that another child lost their life, and rally a fund raiser to help research,....God Bless to all the families that live each day, without their precioud child....
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3-11-2010 @ 5:13PM
jenns said...Personally, I feel these are private matters. It all just seems so self indulgent.
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3-11-2010 @ 5:12PM
Nadia said...We should not judge these parents until we have walked in their shoes. If it helped them deal with their family tragic then I am happy for them. I lost a son 17 years ago. I wish I hard twitter to express my feeling. I would have scream from here to the moon if I knew that people were praying for me.
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3-12-2010 @ 1:31PM
JNicole said...Interesting article. I had major surgery about a month ago. As I was being discharged from the hospital, I got a call that my 13 year old cat needed to be put down. Ten days later I got a phone call that my brother had passed away unexpectedly. Although I'm young and belong to a few social networking sites, I do believe in propriety. I hesitated for a moment before posting the news of my brothers death and the details that followed, but only for a moment. I realized I could share the news without having to take many phone calls or send multiple emails, all of which I was too numb and overwhelmed to do. Sometimes I don't want to talk to someone, I just want to talk. Facebook, twitter, etc., allow that space.
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3-11-2010 @ 5:20PM
Lisa said...Just ask yourself "For whom the bell tolls".
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3-11-2010 @ 5:35PM
Patty said...Grief is a journey which starts long before your loved one departs this life. There are no road signs or direction along the way. Your tour guide is your heart, and it is wise to follow your guide.
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