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Opinion: Is Tweeting Our Family Tragedies the New Normal?
Filed under: Opinions
There is a little girl named Layla Grace who died yesterday. She had cancer, and I followed this 2-year-old's downward spiral from the time she was diagnosed with neuroblastoma 10 months ago.
Layla Grace was not my neighbor. She was not my child's nursery-school classmate nor the daughter of a friend. She was not a member of my church or even a resident of my community. I do not know Layla Grace -- or her parents -- but her passing weighs on my mind nonetheless.
I know Layla Grace through Twitter. The child's parents were tweeting and continue to tweet about their loss, and blog about it as well. Some say using social media to reach out to other moms and dads during times of tragedy is a way to connect us all, across the usual dividing lines of race, class, gender, sexual orientation and geography.
I used to think so, too.

In fact, I wrote a piece on the topic last year, after a California couple shared their grief at the passing of their 17-month-old daughter and Twitter mobilized around them. They had been raising money for the March of Dimes at the time of the child's death -- she was born 11 weeks premature -- and by the time #Maddie was trending, which is the way you find a topic on Twitter, they raised more than $100,000 through donations from, literally, virtual strangers.
At the time, I called Twitter the modern version of a back porch, where friends and community members gathered with casseroles and comfort when tragedy struck. I believed that then, and in Maddie's case, it is still an accurate metaphor.
Now I wonder just how much tragedy we can absorb before we are immune to it. Layla Grace's journey to death, and her parents' overwhelming grief, is almost unreal. It feels like a play, or a TV movie of the week. My fear is that we will cross the line from compassion to consumption.

Layla Grace's dire condition attracted the attention of celebrities like Ryan Seacrest, Paris Hilton and Kim Kardashian, all of whom helped the 2-year-old's mom in her effort to raise awareness of the child's condition -- stage four neuroblastoma, a cancer that is common in infancy and childhood. Their involvement in the story made it ever more surreal, and more and more like the plight of a fictional character.
I fear we are in danger of grief and loss becoming so abstract that it seems more like entertainment than tragedy. While there's no doubt that most people who reach out to families in need are genuine in their empathy and compassion, there is another side to that coin. In a sickening way, it feels almost trendy to glom on to what were once the intimate moments of tragedy borne only by families and their closest friends.That is one trend I will let pass me by.
I can't judge the parents of these children for needing to share their sadness. I cannot and will not pretend to understand the heart and mind of someone whose child has died or is dying. That is not my right.

Maybe I'm crazy. Maybe tweeting our family tragedies is the new normal, the Web 2.0 version of gathering around those who are suffering. What I do know is that I need to turn away from the screen when I see this kind of pain and agony scrolling by. Not because my heart is hardened, but because I fear it may become so.











ReaderComments (Page 6 of 8)
3-12-2010 @ 9:58PM
Mark said...I respect those who turn away for a break when they need to. I certainly respect those who felt some lines of decency or at least privacy were crossed. I just stumbled upon this story a few minutes ago and I felt both. But my friends, the same thing has been happening with TV for over a half century. For those of us who are blessed enough to not have had a death in the family in the last 48 hours, we praise God. But, if you are like the family of Kayla or my friend Pete Giordano and his family in Florida your beloved sister just died this morning of cancer, and you might appreciate any extra prayers for comfort that the readers of this blog would offer on your behalf. If you're a Christian, your God has asked you to "bear one another's burdens". If you don't know, you can't bear.
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3-11-2010 @ 5:42PM
vinnie said...this is just wrong. A families grief really has no place on twitter or being blogged about. There are other ways they could have kept family informed. This all boils down to some peoples perverse need to intrude in others lives. Be it a lack of their own life or to feel better about their own messed up lives. It is akin to celebrity worship. And those greiving for a family they do not know is just an extention of the mass nosiness that we suffer from. Pay attention to your own families and you will find that they are just as wonderous and touching and heartstring pulling as families that you simply read about.
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3-11-2010 @ 5:43PM
Diane said...I just stumbled onto this site. I have never heard of this child before,l but I have been following a child for almost 4 years on Care Pages. I have never met that child or her parents, but that doesn't matter. They need my prayers along with all the others they can get. I have prayed this child through an absolute miracle when she went into surgery and was given only a 1 percent of living through the surgery. It was later learned that over 4000 people were praying for that child that night, and she got her miracle. This was two years ago and the child is still going strong. She still has medical problems and has more surgeries to face, but we are all still heer for her. We have become family without ever meeting these people. The child has become OURS. Her family has become OURS. We have held her and them up in prayer. By the same token, I went through a very rough period in my own life and I can surely state that I felt being held up by the prayers of others. If you have never physically felt being held up by the prayers of others, you have no idea what you are missing. I am sure that Layla Grace's family would say the same! This is part of what Jesus meant when He said to "Love your neighbor as you love yourself". These people are my brothers and sisters in the Lord and I expect to spend eternity with them.
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3-11-2010 @ 5:51PM
Marcia said...OMG. It's unbelievable what people will and will not pay attention to.
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3-11-2010 @ 5:58PM
Donna said...This is our new world. People are twitting about everything. Losing ones virginity, having a tooth pulled, what they eat for breakfast.
In all honesty, I miss the world before computers. The 70's!
Kids were creative, we made up games instead of parking ourselves in front of an xbox all day, or guitar hero.
We road bicycles, if we midbehaved at school, we'd be punished with detention or a couple swats on the bottom with a paddle.
Our parents gave us choirs, taking out the garbage, mowing the lawn, or raking leafs.
A vacation wasn't always some place for the kids, sometimes it was the Grand Canyon, or Lake Powell.
It was such a different world. Too bad kids today missed it!
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3-11-2010 @ 6:38PM
michelle said..."I fear we are in danger of grief and loss becoming so abstract that it seems more like entertainment than tragedy"
The author has nothing to fear. When tragedy strikes at her house, at mine, at yours, you will indeed feel the pain, grieve the loss, and trust me, it will not be entertainment.
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3-11-2010 @ 6:02PM
John S said...Even worse is the danger of phonies, using the same tactic that was used on Facebook. Creating a fictional drama to get $$ and disappearing.
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3-11-2010 @ 6:03PM
Eugenia said...Having experienced basically the same set of circumstances I have to wonder where they found the time to tweet.
Sorry, I understand completely the need to connect in times of extreme stress and sorrow but with real people face to face. A tweet doesn't begin to compare with shared hugs and tears. Somehow, electronic coping seems like another dose of reality TV.
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3-11-2010 @ 7:22PM
Emilee said...Maybe if you thought about it fully you'd realize that not only did it bring together a community of people it also heightened awareness of Neuroblastoma in children...I for one learned things I never knew, like there is the possibility of detection at birth. I don't think most of us could ever get cold over the sickness and death of a child. Maybe you should read her entire blog. This little girl was a fighter and opened eyes to parents concerning feelings, love, prayers, and childhood illness.
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3-11-2010 @ 6:13PM
Steve-a-rino said...It doesn't matter how we hear about the deaths of others, people won't care one way or the other. It's momentarily shocking, then off we go to another crisis. Humans are no more "caring" than the herd of wildebeests in Africa that stand by and watch one of their own be eaten by lions. Just something to chat about while we run off to do our thing.
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3-11-2010 @ 6:38PM
Lynn said...My child is awful. Several doctors have told me he is unable to be helped. He lingers on these many many years. He has worn out his parents. We get no emotional support from family and friends; they wore out long ago. And yet our suffering goes on. Even if it is wrong because it is so impersonal, kind words help. Even just having an audience to 'tell' occasionally, helps maintain my sanity. So yes, it may seem we are de-sensatizing our society by sharing our misfortune, but if the internet can bring great joy, as it does to so many, it should be able to help share our burdens also.
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3-11-2010 @ 6:54PM
Char said...Many blessings to you, Lynn.
3-11-2010 @ 7:51PM
Meri said...As the mother of a child with a terminal, incurable disease that nobody has heard about, I do think that social media has a place in raising awareness about the struggles families face in trying to care for a child. Maybe through increased awareness, some of these terrible diseases can be cured.
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3-11-2010 @ 6:16PM
Bruce said...The issue is not this family choosing to tweet, it is the question "how many times will people be interested?" There is a child dying of some horrible disease every few minutes of every day of the year and will be far into the future. How many times can you break your heart for a stranger before you can't break it again? Will you exist in a constant state of grief for the rest of your life?
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3-11-2010 @ 6:22PM
terri said...I think its stupid to talk to total strangers about something so personal !!! Talk to your own family and the church not people who don't even know you !!! I think this little girl deserves some dignity and respect instead of people knowing every little detail of her life!!! If the mother and father needed someone to talk to , i'm sure they could have emailed their family and freinds !!!
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3-11-2010 @ 6:27PM
Brian said...SHAKESPEARE TAUGHT US SUFFERING
America is addicted to suffering and grief. Why? Because America has become shallow. It wallows in its own grief.
Look at these comments people have written. Grief has become a competition. "I lost a son, therefore I know what grief is and you don't. I suffer and therefore understand MORE than you!"
All grief is universal. Everyone UNDERSTANDS that the suffering of a parent whose child dies is horriffic, painful, sickening, and ever-lasting. And everyone knows the sorrow never goes away. Afterall, we have the greatest line in Shakespeare ever written when King Lear finds his beloved daughter dead. He sreams: "Howl, howl, howl."
We all know grief. Does Tweetering about it make it more understandable? My answer: No. So universally, it's useless, and only another symptom of victim-hood in our society that is marching always forward toward making suffering a badge of honor.
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3-11-2010 @ 7:40PM
Kat said...I agree. Anyone that disagrees just doesn't want to hear the truth.
3-11-2010 @ 8:09PM
Brian said...Thanks, Kat - It's interesting how people always jump to the same tired phrase, "I could NEVER understand how you're feeling because I've never experienced what you have experienced."
This writer even takes it to an entire new level: It's not even "her right" to question or understand because she has never experienced such a thing as a parent losing a child.
Let's today shake from our society this anti-intellectual notion that experience takes precedent over intellect, imagination, and the basic human understanding of what it means to be human.
Just because I'm left-handed doesn't mean a right-hander can't understand the practical difficulties I may have in life. For me to think otherwise would be patronizing and foolish; for this writer (a writer!) to believe that she can't understand the grief of a parent suffering over the loss of a child proves, once again, that no one is reading anymore. This is basic stuff covered in Hamlet; covered in King Lear; covered in the Scarlet Letter. It's all there. And these authors will show you how shallow grief is when they bring you to a higher realm of hope.
So I would suggest Dylan Thomas's poem, "Do not go gentle into that good night," for all those who want something other than Twitter, and feel the RAGE he talks about when asked to fight death.
3-11-2010 @ 6:32PM
Char said...I don't know if I would be Twittering if I was going through a similar situation, as I am a very private person, but I think it is a wonderful idea!
Sometimes you just need to get things off your chest and talk or write about them and, caring for a sick child doesn't really allow you to get out and around people. There is a site called CaringBridge that is basically the same thing. You register for free and use it to update friends and family. You can post pictures and decorate with different themes, and people can leave messages and comments. Most people find this an excellent way to keep in touch in a really tragic situation. We may be suffering from loss of face-to-face interaction, but we certainly are not suffering from making new friends. If anything, keeping tabs on Layla and her family brought perfect strangers together to share their grief and comfort a family.
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3-11-2010 @ 6:32PM
Jennifer said...In December 2008 our daughter got very sick. We were admitted to University of Michigan and our daughter ended up needing a heart transplant as a result of cardiomyopathy. Our friends and family wanted to know what was going on, so we started a Carepages blog to keep them all informed. It also allows other people who are in similar situations find you and you can network and ask questions, etc. Our daughter received her heart Dec. 16, 2008 and is doing well. But our carepages allows us to update friends and family and not worry about did we miss someone or hurt anyones feelings as we still post updates for our friends and families.
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