Hot on HuffPost Parents:
Abbie Rumbach: The Confession That Blew My Daughter's Mind
PHOTO: Reese Witherspoon, Ryan Phillipe Reunite
Susan Lucci and Her Husband Discuss His Heart Condition, Stroke Prevention
Filed under: Celeb Parents, Celeb News & Interviews
Susan Lucci and her husband, Helmut Huber, are speaking out to help others prevent AFib. Credit: Joshua Zuckerman Photography
For more than 40 years, Susan Lucci, 63, has played Pine Valley's manipulative and fearless Erica Kane on "All My Children," leading the soap opera star to act out some truly bizarre scenarios.
But, on rare day off 11 years ago, Lucci received a phone call from her husband, Helmut Huber, 73, that sent chills down her spine, a feeling her TV persona is not familiar with.
Huber had seen his doctor to have a minor shoulder procedure performed, when it was discovered he had atrial fibrillation (AFib), a type of irregular heartbeat that can increase a person's chance of having a stroke by five times.
Lucci took a cue from her character and sprang into action, refusing to let his condition get the best of her or Huber, whom she married in 1969. The couple have two children, actress Liza Huber, 35, and golfer Andreas Huber, 30. Liza is also the mom of Lucci and Huber's two grandsons, Royce, 3, and Brendan, 2.
In an effort to spread the word about AFib, which affects more than 2.3 million people, the couple recently launched the Facing AFib campaign. Lucci and Huber sat down with ParentDish to talk about the condition.
ParentDish: Helmut, what was your reaction when the doctors diagnosed you with AFib?
Helmut Huber: My legs started shaking, I was so terrified. I was healthy as an ox, never had any symptoms, not to mention how there was no history of it in my family.
ParentDish: Susan, did you fall apart?
Susan Lucci: Thank God I was home. My only focus at that moment was to find out what Helmut had. I started calling everyone I knew and was soon led to St. Francis Hospital in Long Island, which not only is 10 minutes from our home, but they had a great team of cardiologists.
PD: Since we are talking 11 years ago and the Internet wasn't then what it is today, where did you gather your information?
HH: I talked to my friends to find a great doctor.
PD: Research indicates 30 percent of those who have AFib don't experience symptoms and therefore don't know they have it. But what are symptoms people should be aware of?
HH: Shortness of breath, a racing heart, a fluttering feeling and dizziness.
PD: How did you tell your two children their dad has a heart condition?
SL: I wanted him to tell them the information and then decide what he wanted to say. I wanted to be careful because we did not want to scare them.
HH: I was blunt. I said, "look, I have a bad heart, so now you guys have to be extra nice to me." (Laughs.)
PD: How did they take the news?
HH: I assured them I was being watched over, by a great team of doctors, and that I was on proper medication. I also told them I would now be following a healthy diet, which means my favorite hot dogs are out.
PD: About 55 percent of AFib patients have altered their lifestyles because they live in fear, while more than 40 percent go on as if nothing ever happened. Which side do you fall on?
HH: I am in between. I have a plan set up so I can still ski, golf and exercise.
PD: Does Susan make you carry a cell phone in case of emergency?
HH: She makes me take it to get the mail, the newspaper, basically everywhere I go. (Laughs.)
PD: Susan, what is your role in keeping him healthy?
SL: I have gone to a number of doctor appointments, so I have all the information I need to know. In terms of diet, my daughter and I make him eat fresh fruit, grilled salmon, lots of fish and vegetables, too. Diet plays a key role in preventing having a stroke.
PD: Are you scared of having a stroke because your chances are greater than some people?
HH: I don't necessarily live in fear, but it is always in the back of my mind.
SL: I don't live in fear day to day, but what's frightening is knowing that his chances of having a stroke are five times greater and it can be fatal. That thought makes my knees shake.
PD: Now that you both are the faces of this campaign, what is your goal going forward?
SL: We taped a public service announcement to say even if you are healthy, get a check up because an EKG will show immediately if you have AFib.
PD: Susan, since you now film "All My Children" on the West Coast, do you let Helmut fly back and forth with you?
SL: Yes, because he is able to walk around on the plane and the doctors have cleared him to fly.
PD: You strike me as a fun couple. What do you do to let loose?
SL: We love dancing and are going to a wedding next weekend where we will dance a lot. We go skiing as a family, we take walks on the beach and spend Sunday nights having a pizza party with our son, daughter, her husband and their two boys. One of our grandsons is 2 years old and the other is 3 years old. Those days are such a thrill.
PD: Is there a resource you find particularly helpful for people to to learn more about AFib?
SL: Yes. They can go to FacingAfib.com and StopAFib.org.











ReaderComments (Page 2 of 3)
10-04-2010 @ 6:34PM
carol said..."Edward McMahon said...
My brother and I each have a variation of AFIB called Atrial Flutter". It is not nearly as threatening as this overly- dramatic article would lead you to believe. "
Because it is a 'variant' it may have different implications.
10-05-2010 @ 2:36PM
Nikki said...The MAZE Procedure - my father had it and it cured his Afib. You don't have to live with it.
http://www.inova.org/healthcare-services/heart-and-vascular/heart-rhythm-treatments/a-fib-program/maze-surgical-procedures/index.jsp
Reply
10-04-2010 @ 3:54PM
Joe said...I had a very similar experience, but at the age of 31. I had a minor knee operation for an MCL/Meniscus tear. When I came to, the doc told me he's no cardiologist, but my heart rate was "all over the place" while I was under and I should get it checked out. Long story-short, I'm now 33 years old with a pacemaker/defibrillator, after being diagnosed with Hypertrophic Cardiomyopathy. I have been in good shape all my life and involved in athletics (mainly soccer) until I was told I'd have to "retire" and start taking it easy. I never had a symptom in my life...
Reply
10-04-2010 @ 4:11PM
Bird said...I, too agree with mhar 4088. I am a born again Christian & am so THANKFUL for my Brother whom constantly kept witnessing to me till I finally gave in & repented of my sins. I have now gotten married with another Christian member of my Church & am in ministry. The person by the name of everest 1jb is going to realiZe that what has been said is true. Remember Brothers & Sisters what has been said in the bible about people making fun & rejecting Us but all along; are rejecting the Father whom is to return & see all the same ignorant people (like everest) BOW DOWN to their knees & worship him. I cant wait for that glorious day & just hope these people that are talking smack have the chance to repent.If not,their time of judgement is coming & I would hate to be them!!!! Our Church has so many videos of EX scientist whom were atheist & say there was no God but their eyes have now been opened to REALITY & can see & have made their point against the so called "science" that you say will find a cure.They have tried over & over to create an eXplanation of this "big bang theory" & the animals & their change of lives & so on,& it has come down to GOD being the ONLY EXPLANATION TO THIS WORLD & CHANGES IN LIFE. So in a shorter version AMEN to Jesus Christ whom died on the cross for our sins!!!!
Reply
10-04-2010 @ 4:00PM
mike said...One day driving home in RUSH HOUR TRAFFIC feeling like I worked out in the gym for several hours, I knew something was'nt right ! DAMN cood Idea I decided to get to the nearest hospitol ,turns out I was having a HEART ATTACK !
Reply
10-04-2010 @ 4:06PM
pAMELA said...I don't want to come across mean on Susan Lucci but I have been a breast cancer survivor and my husband had two heart attacks and stents put into his heart but he had a anysuisum (sp?) in hs head which his Mother died of so what is the big deal of her having medical problems with her spouse. We poor people have many bad health issues and do not have the money to go any hospital or doctor because we can afford it like Susan can. Movie stars have the money for cosmetic and serious medical problems that we middle income don't and they always say don't she look beautiful at 70 or 80 well she should she has the money to help make her look beautiful with her trainer dermatologists, etc. Don't write to me about a star's problem because its nothing with like the real people live with every day.
Reply
10-04-2010 @ 9:47PM
jake191218 said...First of all pAMELA nobody wrote to you. You made the choice to read this article. I'm sorry that you and your husband have been ill. Rich or poor, we all suffer pain and fear when someone we love is ill.
You should try to resolve your feelings of anger and bitterness. It can contribute to physical illness. I wish you the best in the future.
10-04-2010 @ 4:32PM
terri said...I think Susan Lucci is a beautiful person , to have stayed married to the same man and work as hard as she does. I hope i could look half as good as she does at her age !!!
Reply
10-04-2010 @ 4:24PM
Rick Carter said...There are a large number of neurotoxins available in nature, and I am personally hoping they can one day use some form of neurotoxin to get rid of these abnormal electrical discharges responsible for atrial fibrilation, even if it has to be chemically modified for this particular use first. They might start out by multiple local site injection using a neurotoxin whose effect is short lived (Botox?), in order to identify the key sites necessary to treat this condition, before eventually switching over to a neurotoxin which can effect a permanent cure. I hope they will find some way to fund this research soon, since this condition is not a rare condition. Just a suggestion which I hope can help! - Rick Carter
Reply
10-04-2010 @ 4:31PM
Sandy said...I wish her and her husband well. I will always love Susan but wish she would stop acting so much and spend more time LIVING life with her beautiful family. People on soaps work such long hours and I just think of her doing it for so long.. but whatever she likes is what she should do. She is so beautiful, I wish I could afford her secrets. Besides her beauty though, she just has a lot of class.
Reply
10-04-2010 @ 4:33PM
Sandy said...P.S. I love the Lord too, and without Him, my life would still be a mess. With Him, my life is full of hope and love, and even though things look gloomy out there in this big bad world, with God, I can face tomorrow~
Reply
10-04-2010 @ 4:37PM
Patti said...HAHAHA YOU F"N BITCH ERICA, its about time something miserable happened to you you f'n whore...rolmfao
Reply
10-04-2010 @ 4:40PM
trishwhite5 said...I was diagnosed by a doctor who was my pain doctor. she was previously a cardioligist. I have had a Cardiversion, and am on 3 perscriptions. It has been 2 months since my proceedure, and I am back to a normal rythm. I am so blessed!!!!!
Reply
10-04-2010 @ 4:39PM
michele said...Many people have irregular heartbeats and still live long and healthy lives. It does not neccessarily mean you are going to have a stroke or drop dead. For many people, it's a functional disorder. I've had palpitations most of my life, as did my grandmother, who lived to be 91.
Reply
10-04-2010 @ 5:53PM
John A said...Edward McMahon is right. Having a-fib is not that big a deal. Being a "Christian" has nothing to do with the condition. And having a-fib isn't nearly as dramatic a deal as Susan and her husband make it out to be. When I learned of my condition my knees didn't shake and I wasn't the least disturbed. It is something you can live with and doesn't really have a big impact on your life.
Reply
10-04-2010 @ 4:53PM
Lydia said...As usual, Lucci overdramatizing. You and your husband have been told of a heart disorder, relatively easy to control. You are not on stage now; skip the drama and hype. In other words, grow up, deal with it and get on with your life.
Reply
10-04-2010 @ 5:00PM
Dan said...All right now, if everyone doesn't play nice, no one gets a cookie.
Reply
10-04-2010 @ 5:02PM
Dan said...I went to the doctor the other day. I said, "Doctor, it hurts when I do this." He said, "Then don't do that."
Reply
10-05-2010 @ 10:25AM
duane said...What is it with these goof balls aman??? God this jesus that, Know what people that Ark you all say saved all the animals in this world, wasn't even big enough for all the animals to be on. I don't think you could get all the animals on a air craft carrier, seeing as there still finding animals we didn't even know where on earth today. Someone would of had to have a jet boat and plane to round them all up before they got flooded you morons!!!!!! And when you find some guy that parted the sea by parting his arms you let me know K...... Ohhh by the way Ant susan pain lucci... Why don't you do me a big favor please? Keep your TV Land garbage away from me please...They have done nothing but F-k my life up... there twins, there so called protective staff, your agents, and the stalkers that fallow them... Wish I never mett you Meredith vieira, Diana swayer, Jean chatzk, Natalie morales,Victoria principal, and the rest of the Hollywood garbage that ruined my life....
Reply
10-04-2010 @ 5:32PM
Carole said...My husband was diagnosed over 20 years ago with atrial fibrillation. They tried to shock his heart into normal rhythm by stopping and restarting his heart. Didn't work well, so he's been on Coumadin and has never had any problems with his heart since. Neither of his Cardiologists ever referred to my husband having a "bad heart."
Reply