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Opinion: Parents of Austic Children Have More to Celebrate Than Mourn
Filed under: Special Needs, Single Parenting, Opinions
No matter how you slice it, it's a stressful job, and the hours stink. But the rewards? Phenomenal. Credit: Getty Images
And I mean single. I am all alone here.
My son's mother lives 400 miles away and rarely sees him. I have not sought or received so much as a dime of child support, even though I am pushing 50 and am still hanging by a thread on an income that ...
Well, just don't major in journalism, kids.
Am I whining? Am I complaining? No, but maybe I should. It seems to be all the rage these days.
I just finished reporting a story about how parents of autistic kids make less money. Oh, it's horrible. Mothers apparently suffer the most. Fathers, as we all know, are insensitive louts who don't give two good hoots about their kids -- especially if they're "damaged."
So it falls to Mom to take lower-paying, more flexible jobs so she can act as a case manager for her disabled child.
Boo hoo.
If that's your sob story, you came to the wrong single father for sympathy. I feel increasingly cold toward fellow parents complaining about the trials and tribulations of having autistic children.
I feel toward them the way I did when I was a newspaper editor, and young reporters whined to me about their long hours and low pay. No one lied to them in the brochure. They knew going in that journalism was a hard-knock life.
The same is true of parenting. No matter how you slice it, it's a stressful job, and the hours stink. So does the pay. There's a reason childless couples are off exploring the fjords of Norway while you stay up nights worrying about how you're going to pay for your kid's braces.
That's true whether or your child has autism or not. Autism just adds a whole other level of stress.
However, the rewards of parenting are phenomenal. I love having an autistic son. I love that he geeks out about trains, road maps and World War II history. I love that he can repeat almost every line from every TV show and movie he has ever seen. Yes, it makes him different. But different is good.
In fact, in our bland vanilla world where so many people seem to be sleepwalking through life, different is fantastic.
My son has a high-functioning form of autism, so I may have it easier than a lot of parents. Then again, a lot of parents have the day-to-day support of a spouse and higher incomes. Bottom line: We all have problems.
I just wish we could all learn to enjoy what we have instead of whining so much about what we don't have. Autism is not necessarily a bad thing. It's just a thing.
I have a great life, career and son.
Logistics and life circumstances may keep my ex-wife at a distance, but my son knows his mother loves him. So do I. She and I didn't break up because of what writers perpetually call the "grim toll" autism takes on families. It just happened, like it happens in some 50 percent of marriages.
That's the point, I guess. Life just happens. Some of it's good. Some of it's not so good. It mostly depends on how you choose to respond to it.
Autistic children are not conditions to be managed and treated or problems to be endured. They are people to be understood -- and celebrated.
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ReaderComments (Page 1 of 1)
5-13-2011 @ 2:01PM
Courtney said...Austic? Is that like Autistic?
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5-15-2011 @ 2:10PM
Stacy Ezor said...You should be grateful that your son is high functioning and manageable. Remember that Autism is a spectrum. Some parents have to face self injurious behavior, feces smearing, aggression and constant stimming on a daily basis. For many parents, having a child with Autism is extremely stressful. They need to have our support instead of being told they should just buck up and look at the bright side. Until you have had to walk in their shoes you shouldn't dismiss the stress of others.
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5-18-2011 @ 6:43PM
Nicki said...Ok, here's Tom's quote in its entirety: "My son has a high-functioning form of autism, so I may have it easier than a lot of parents. Then again, a lot of parents have the day-to-day support of a spouse and higher incomes. Bottom line: We all have problems." Stacy, you said he should be grateful his son is high-functioning. Forgive me if I'm reading too much into your statement, but I see nothing to suggest he isn't. If I am reading too much into your statement, feel free to disregard this comment. I just don't want other readers to get the wrong idea.
5-26-2011 @ 9:41AM
Tina said...Stacy, your comment is exactly why I'm grateful to this author for saying what he has. All that you listed, aggression, feces smearing, self injurious behavior (I have no idea what constant stimming is), are also normal childhood behaviors. Parenting isn't easy, no child is perfect nor do they come with an instruction manual..remember? Even a sweet angel can turn into a rebel devil once puberty hits. So your child has Autism. You will have a more difficult time, which is an understatement. Just love your child, please. Use the time that you spend blaming shots and chemicals and whining and crying (unless you need a break from the stress) and focus on your child. As the author said, enjoy the differences.
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5-18-2011 @ 7:35PM
sezor said...It saddens me that both you and the author of this piece have so little empathy. The entire tone of the article is so snarky, as if the fact that an article about how mothers of children with autism earn so much less is equivalent to those mothers complaining about it. I wish that everyone who thinks that autistic behavior is the same as what normal kids do sometimes would take care of a low functioning autistic child for a week. They could then see how hard it is and might not be so callous. In case you are wondering, my child with autism is very high functioning, but rather than putting down those who have more stress, I have learned to be grateful. Parents of children with autism can have very stressful lives and they need support not criticism.
5-18-2011 @ 10:32PM
Tina's Son said...I agree with the author on this one. Firstly, he was referring to high-functioning autism, not the more extreme forms, and in this case, it may scarcely deserve to be called a “condition”. It is generally agreed that I have a very high-functioning autism, but was simply misdiagnosed at a young age as having ADHD, rather than simply getting things faster (In my advanced algebra II class, I often finish can begin the homework while my teacher is still explaining part of the notes, my having completed part of them). I’m thankful for this, because not undergoing the treatment has allowed me to feel more normal than I otherwise could have. Furthermore, the point of the article being written was to say that people need to enjoy their children, autistic or not, and to take a positive outlook on life in general. Complaining may feel good in the short run, but in the end, sadness begets sadness. As far as I can tell, Mr. Henderson was merely asking that people not give the parents of truly disabled children the cold shoulder, but for the parents to win empathy and sympathy with the words “I love him, and wouldn’t have him any other way.” -Tina's Son
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