Boy Born Without Skin Is Wrapped in Bandages Each Day

What a horrible thing to say, you need to get some professional help.
My prayers are with this family and I'm hoping God grants him a long healthy and happy life.
I sure hope you don't have children.

Hi im 15 and I have a rare disease...does that mean I have Herpes? This little boy could die and thats what you say? Next time you should consult a dictionary before you decide to make your ignorance public. If you dont have anything nice to say THEN DONT SAY ANYTHING AT ALL!!!! You are a very rude person and I hope you never have to go through what this family is going through.

As for the family Godbless them all!

First of all, Patricia, herpes would have been detected in the mother with prenatal testing and there are precautions to prevent spread to the child (usually the cross infection is spread through vaginal delivery) in the form of C-sections. Leprosy is not even a major disease these days, s it is completely curable through modern medications. Second, genetic disease testing is possible but only for a limited range of diseases (tay-sachs, spinabifida, for example) with conditions like this, they are so rare that they do not recieve the funding to develope testing in utero, and since neither of the parents showed the symptoms, more than likely they believed their child wouldn't either (as stated his 5 year old sister wasn't affected) or perhaps they didn't know and in cases like that, they wouldn't test for it. You would be shocked at how much genetic garbage and diseases from early stages of human immunodefiency you carry in your dna...usually it just sits there, completely dormant, but every once in a while, due to mutation something from the past will suddenly appear, such as this baby's condition.
So, while you finish high school, make sure to take a biology class or two. Then at community college, stick to something that will keep you away from the normal human population, lest your ignorance pass on to future generations.

I cannot believe how ridiculous you are..this child has a medical condition and it is not herpes and it is not leprosy..before you make stupid comments, I think you should know what you are talking about..Your comment is as bad and annoying as the idiots who keep using the "comments" to talk about penny auctions and other non topic things..it really is enough.

Your genius is showing... Just goes to show you how ignorant people are. Try wikipedia.org, maybe then you can get your congenital diseases correct.

I cannot say what sort of human you make look bad by your display of ignorance, as to compare you to any type would be an insult to them.

Cold-hearted witch.

Having lived with a mild form of EB for 54 years, Patricia's comments do not surprise me at all. EB is an orphan disease, there are roughly 10 thousand known cases, not nearly enough to make research profitable. There is no testing to tell if you are a carrier. A large numbers of those born with EB will die early, some will make it to there late teens, but must live with disfigurement and constent pain. A lucky few with the mildest form of EB will make it to my age. Even in it's mildest form EB is a health risk. I was born with no skin on my right foot, thanks to a skin graft I still have that foot, though it is very easy to injure. If I go out in the sun I must wear a hat, long sleeve shirt and sunglasses. I don't tan, I blister. With out the sunglasses my eyes will burn, a condition like welder's flash. The skin on my legs is so thin that any contact with hard objects will cause areas of skin to "peel" off. Infections are a constant part of my life. Blisters can and will form anywere, so far I have been very very lucky I have suffered only some minor skin deformaties. I have been to Doctors who did not know about EB. In fact as an infant one doctor claimed it was an alergy to mothers milk. Being adopted this at least has provided some humor to the whole thing. Recently during an outbreak of blisters I visited a dermatoligist, guess what, she had never heard of EB! So it doen't surprise me to read some of the comments on here. There are a lot of things in this world we have never heard of. I just hope that someday EB research will get the funding it needs. One last thing please don't rip into me about my spelling!! LOL

Wow. You see a child who is in incredable pain when unbandaged and you can whip up a snap judgment like that. All I can say is you must have herpes to diagnose him so readily!.

You are a horrible individual.

ignorant person, maybe you're the own with leprosy or herpes, educate yourself before making these ignorant comments.

Please don't post comments unless you know about the subject matter. It may be your opinion that viruses are the same thing as a genetic disorder but you couldn't be more incorrect.

The article clearly states that the child has "a rare spectrum of inherited skin disorders called epidermolysis bullosa." The term inherited is often used to mean genetic, which indicates that the condition is the result of a combination of DNA from the father and mother. In this case, both parents are asymptomatic but carry the genes necessary for a child to have a 25% chance to "inherit" the condition.* This process of inheriting a disorder is not any different from that for sickle-cell anemia, Tay-Sachs, hemophilia ("Bleeder's Disease") and other genetic disorders.

Leprosy and herpes are not genetic disorders. They are communicable (contagious) viruses that in no way physically or genetically resemble epidermolysis bullosa. In this instance, the mother stated that the condition looks like a third degree burn, which involves all layers of the skin.** Neither leprosy nor the various types of herpes (e.g., herpes zoster, herpes simplex II, etc.) resemble a third degree burn. Further, unlike the disorder from which Brody sufffers, treatments exist for certain viruses.

*A child born to this couple would also have a 50% chance of being an asymptomatic carrier and a 25% chance of not having the disorder and not being a carrier. Presence or absence of carrier status can be determined by genetic testing.

**Third degree burns destroy the epidermis (outer layers of skin) and dermis (entire layer beneath the epidermis), in effect killing that area of skin. They cause white, yellow or blackened, charred skin that may be numb.

CORRECTION: I apologize for my previous post placing leprosy in the category of viral diseases. The post was sent before being proofread following a mostly sleepless thirty-six hour ER shift.


Patricia, please don't post comments unless you know about the subject matter. It may be your opinion that viruses or a bacterial disease are the same thing as a genetic disorder but you couldn't be more incorrect.

The article clearly states that the child has "a rare spectrum of
inherited skin disorders called epidermolysis bullosa." The term
inherited is often used to mean genetic, which indicates that the
condition is the result of a combination of DNA from the father and
mother. In this case, both parents are asymptomatic but carry the
genes necessary for a child to have a 25% chance to "inherit" the
condition.* This process of inheriting the condition is not any
different from that for sickle-cell anemia, Tay-Sachs disease, hemophilia ("Bleeder's Disease"), cystic-fibrosis and other genetic disorders.

Leprosy and herpes are not genetic disorders: Leprosy is caused by a type of mycobacteria; and the various forms of herpes are caused by viruses. They are communicable (contagious) diseases that in no way physically or genetically resemble epidermolysis bullosa. In this instance, the mother stated that the condition looks like a third degree burn, which involves all layers of the skin.** Neither leprosy nor the various types of herpes (e.g., herpes zoster, herpes simplex, herpes type 2, etc.) resemble a third degree burn. Further, unlike the disorder from which Brody sufffers, proven treatments exist for leprosy and herpes.

That being said, I absolutely believe in the power of prayer and will
pray for Brody and his family.


*A child born to this couple would also have a 50% chance of being an asymptomatic carrier and a 25% chance of not having the disorder and not being a carrier. Presence or absence of carrier status can be determined by genetic testing, which can be extremely expensive. PLEASE NOTE: The article clearly states that the parents DID NOT KNOW that they are carriers until after Brody was born.

**Third degree burns destroy the epidermis (outer layers of skin) and
dermis (entire layer beneath the epidermis), in effect killing that
area of skin. They usually cause white, yellow or blackened, charred skin that may be numb and can extend to the underlying bone(s) and/or organ(s).

PLEASE NOTE: The article on another web site clearly states that the parents DID NOT learn that they are carriers until after Brody was born.

No more corrections - have to get some sleep!

Thanks for the correction, dotsuwa7. You beat me to it. Absolutely no more corrections from me as I'm finally going to sleep after this post.

God bless you, Curtis family! I wish you all the best.

There are several forms of 'Bulosa' (which comes from the Latin for blistering) This little boy has the most serious of these. Please don't question me on how I know as I have one of the other forms of this condition and although it is genetic (which means i have had it since birth) I have suffered from it for over 45yrs.

Evidently you don't read...they DID NOT know they were carriers. I can assure you, Heather is one of the LEAST selfish people I know.

They did not know they were carriers. They had no idea anything was 'wrong' until Brody was born.

The child in this story is not be exploited. The child in this story is my son. I never contacted any media outlet, whether it be local or national. Friends of mine are holding a benefit yard sale to help raise money for the growing medical costs that have now been cast upon us. The local media chose to do a story about it, to help spread the word of the yard sale and then the national affiliates of these channels picked up on the story as well. I'm not exploiting my son, for what reason would I have to do that? Since this nightmare started just a little over a month ago, all we've ever asked for from people has been for their prayers. If people want to donate, then great and we will be thankful for them. If people do not, then that is fine too. I don't always donate to the various organizations that collect money. I only hope and pray that more people have been made aware of this horrible disease and hopefully with enough funding and research one day soon a cure will be found.Neither my husband nor myself had any idea whatsoever that either one of us were a carrier for this gene, let alone both of us. This is the recessive form, so it does not run in our family. We had no reason to suspect that we were carriers for any type of condition. This pregnancy was also not planned at all and, not to share too much personal information, but was a birth control baby. It looks like little Brody wanted to be in this world one way or another and he was meant to be born this way for a reason...I'm sure those that come into contact with him will have much to learn.

I have a huge problem with it when people know they are carriers of a genetic disease but choose to have children anyway. It's so very wrong to bring a child into the world knowing that the child might well be born with a horrible disease. But in this case, these people didn't know they were carriers.