Boy Born Without Skin Is Wrapped in Bandages Each Day
Filed under: In The News
"Good Morning America" reports the boy was born without skin on most of his body, a result of a rare spectrum of inherited skin disorders called epidermolysis bullosa, and he must be wrapped in bandages each day to keep infections at bay.
Brody, from Charlestown, Ind., also has blisters on his tongue and inside his moth because of the disease, which affects 1 in 20,000 children, according to the morning show, and doctors are unsure whether the boy's skin will grow.
"We do know that different forms can cause early death in life and it can cause skin cancer," Heather Curtis, 33, the boy's mother, tells "GMA." "Some people go on to be blind or have deformities in their bodies. But we just don't know."
Brody's parents, Heather and Chuck Curtis, as well as their daughter, Mckenna, 5, are carriers of the disease, but do not have it, according to the show.
"EB group disorders are tremendously variable in their severity," Dr. Jouni Uitto, chair of the department of dermatology and cutaneous biology at Thomas Jefferson University in Philadelphia, tells "GMA." "In the most severe forms, children can die a couple of days or weeks after birth. The skin is not functioning. Or they have infections and eventually develop malnutrition and some form aggressive squamous cell cancer."
There is no treatment, the show reports, but bandages are used in an attempt to stop trauma and infections.
Brody's parents are trying to be positive.
"He doesn't show any pain until we do the bandage changes," Heather Curtis tells "GMA." "And he's gotten a lot better. All of his appendages are healed pretty good, except for his left leg. The skin is growing back and it scabs over and is not like an open wound anymore. ... We hope he'll be one of the lucky ones and still be active and play sports and grow up to be a normal kid."
Start by teaching him that it is safe to do so.