Mom Says Son's Life Was Saved Because of Facebook
Filed under: In The News
Deborah Copaken Kogan joined Facebook back in 2008, after her son was being bullied, and officials at his school suggested she monitor his page. But the social media site eventually became a sort of community for the New York mom -- and, she tells "Today," even saved her 4 -year-old son Leo's life.
"It was Mother's Day morning, Sunday morning, and Leo woke up with a rash," Copaken Kogan tells the news show. "I thought, oh, great, he got strep, we've got to go to the doctor. I'm waiting in the waiting room, feeling a little bored. I snapped the photo of my son -- and he was putting his blankie over his face -- and I said something like, 'Nothing says happy Mother's Day like a Sunday morning at the pediatrician."
The doctor agreed that it was likely strep -- the illness was going around his classroom, as well -- and gave her a prescription for amoxicillin.
"I thought great, we're done, he'll be better by tomorrow," she tells "Today."
When Leo hadn't got better by day three, Copaken Kogan posted another photo of her boy on Facebook.
"I said, I'm very concerned, you know, my kid looks very sick," she tells the news show. "Within the first hour of posting this photo, (I had) three friends telling me to go to the hospital, it could be Kawasaki disease. And once I got the strep culture and it came back negative, I just thought, that's it, I'm going. And I just called my doctor."
Copaken Kogan tells "Today" those Facebook messages were a catalyst.
"They said to me, here's the collective experience of 1,400 people, three of whom are telling me it could be Kawasaki disease, a very rare autoimmune disorder I had never heard (that) about effects 3,000 kids a year in the United States," she tells the show. "Many cases of Kawasaki disease don't actually get diagnosed until the fifth day, sixth day, because these symptoms mimic so many other illnesses."
Today, Leo is recovering, although his mom tells the news show his liver is still damaged and may take a year or so to regenerate. But she says he'll be fine.
"The fact that these friends on Facebook took a risk and said, 'sorry for butting in, but I think this could be Kawasaki,' was a miracle," Copaken Kogan tells "Today."
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ReaderComments (Page 2 of 8)
7-15-2011 @ 9:54PM
Kelly said...Don't be so harsh. Young mothers are often accused of over reacting by exasperated medical staff and they don't often have the support of family nearby like past generations did. I think it is wonderful that he Facebook community could help.
7-15-2011 @ 10:26PM
Kate said...The first paragraph she states she was encouraged to join facebook by school officials because her son was being bullied, was it the 4yr Leo that was bullied on facebook?
7-15-2011 @ 11:48PM
Cathy said...Read the article before you criticize. The mom already was taking the child to the doctor. She was sitting in the waiting room with him when she posted the photo online. She didn't post the photo to get her son diagnosed via Facebook; she was using it to vent her frustration and to let her friends know what was going on.
7-16-2011 @ 12:28AM
Dragon said...The fact that you think the ER is the best place to take your sick kid is evidence that you are far too stupid to be giving advice to anyone.
All great Mom's go to other Mom's when they are worried. A community of Mom's (or ideally Mom's AND Dad's) is the EXACT place to go when you have seen the Dr and things still don't look quite right. Doctors, even the awesome ones, are trained. They do stuff day in and day out, and it is quite simply impossible for them to be right all the time. They go immediately to the most obvious or common because it is most likely going to work. The best most qualified Dr's will have no problem if you go to your community and come back with questions/concerns about something. Hell most encourage you to talk to other parents.
This woman did exactly what she should have. Shame on your stupid butt for insinuating otherwise.
7-16-2011 @ 7:25AM
J said...She was NOT being a bad Mom. She used all of her resources. The docs in the ER are usually the least well trained. I once went in for a fever of 104. I told the doc, "Hey, I've got scarlet fever, I know because I have had this before." I explained every one of my symptoms. The doc said is was a virus and an allergy reaction. I explained to him that I was on allergy meds and I hadn't changed anything that my skin touched, He didn't listen. I made him take a culture anyways. 3 days later yup, scarlet fever that messed with my hearing. When I complained that the doc didn't listen to me, I got, "That's why they call it practicing medicine, if we were perfect at it, it wouldn't be practicing." No, hey sorry we didn't listen to you or sorry for letting your hearing go down the tubes. Use any source you can to get the answers you need.
7-17-2011 @ 10:07AM
Sara said...First off I did read the article for those who felt the need to yell at me, perhaps you should go back and read it, she was not at the doctor the second time she posted. I understand, bored mother in waiting room on Mother's day with sick child entertaining herself. I don't understand three days later instead of calling the doctor back or taking the child to the ER you post a picture another picture on facebook whining about the fact he's still sick and waiting another hour to see comments. I have absolutely no doubt that she loves her kids and is more than likely a good mother. I am sure that she does everything for them. It's the mentality seen here and seen on facebook that bugs me. She's one of those "I just ate a sandwich I need to update my status" people because I have 600 "friends" who are dying to know. I think that because I find it so hard to believe that such a rare disease three of her “friends” immediately knew what it was and she’s sharing her children’s picture with all these people. I'm sorry if I sound condescending but society as a whole are not thinking for themselves and I do believe I would have issues if she spent the entire day making phone calls to her friends asking if she should take her child back to the doctor. This could have a much worse heading..... "Child dies while mom plays on Facebook". Doctors are not infallible, they do not know everything that is for sure but if you don't get an answer with the first one keep pushing. Keep asking. And for those who said I don't have kids, I have two. I've been this route with them. I spent over a week in the hospital with my oldest when he was a baby and several times after because of an illness that I feel no need to share with anyone on here but I pushed and I took him back time and time again because I knew he was sick. I didn't play on the computer. I am glad she was able to find help through facebook and I thank those with constructive comments that made me see the other side to the story as opposed to the ones that felt calling names appropriate. I suppose taken in pieces one can think she was looking for help but I think she just lucked out and needed someone to tell her if you're child is still sick you need to get help. It's because the disease was rare it made an article, had it been something simple like appendicitis it would not. Back before facebook when AOL had groups (yup that old!) I belonged to one of those mom's groups. Sometimes people would post things like my 3 month old has been running a high fever for 3 days and hasn't been taking a bottle, do you think I should take him to the doctor? I would log in and see stuff like that and think, pretty much like I said here, really? You need someone to tell you that? I will never understand it, common sense doesn't seem to filter in anymore. I have a facebook account, and I check it probably once a day but not always. My friends on there, I also know everyone of them in real life so I know who I share information with. So please make comments constructive, Sarah is a MORON is not only not constructive Sara is spelled wrong. I kinda like my name to at least be spelled right when I'm being insulted.
7-17-2011 @ 10:18AM
Sara said...For those who said I needed to read the article more carefully, they were right. She has 1,400 facebook "friends". I don't think I've even ever met 1,400 people. Out of these collective "friends" she shares her small children's pictures with. Who in turn can share them with others. I don't think that this is bad person either. I'm sure she loves her kids, does what's right by them, helps them with homework, etc. but there goes the common sense thing again. Who needs to befriend 1,400 people? Oh yeah, farmville, cityville, and those who never outgrew high school. Again I find it staggering and I will never understand it. The point and only point I was trying to make from the get go, albeit a little pompously and I apologize for that, is think for yourself. Oh and get off the damn computer and get outside, it's a beautiful day and I'm sure there are people you know in the real world that miss you!
7-15-2011 @ 2:20PM
Rebecca said...Well i guess she just got lucky, usually posting your child's pics on the internet gets you nothing but creepy pervs and stalkers.
Reply
7-16-2011 @ 1:44PM
sacline said...People turn to the internet for many things these days, there is alot of information out there to be found... and being in touch with people on Facebook is one of those ways... you are reaching out to your friends for help, support, and sometimes just a shoulder. My 3yr old daughter was diagnosed around Mothers day as well with Kawasaki Disease, it was a very frightening time, especially when there is nothing you can do to help your child! I thank GOD that my pediatrician knew what she was doing! She noticed the signs immediately and started the lab work! and we live in a very small town! We also thought our daughter just had strep...
So who cares HOW the diagnosis came about... just be thankful that her friends gave her the information she needed, before the disease progressed to a further stage!
7-15-2011 @ 7:06PM
Michelle said...Clearly Sara has no children and does NOT know what she is talking about....Unless yiu are a Parent & have actually experienced having a sick child who has been mis-diagnosed...mayne you should jusy keep your mouth shut!
7-15-2011 @ 2:35PM
adam said..."Affects," not "effects." How do these things get past editing?
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7-15-2011 @ 8:05PM
jen said...I couldn't get past this either! Come on people! It's not hard - ESPECIALLY IF YOU WRITE FOR A LIVING!!!
7-15-2011 @ 9:42PM
thomas said...hey! Jackass! you meant to type "I am glad her son's life was saved by facebook and they are back together! :)" Paul Teutul Sr of "American Chopper" said that. E-mail me at jesuschrysler1@live.com
7-16-2011 @ 9:07AM
Sierra said...Jeez, Adam. Why don't you go walk on water?! And don't forget your towel.
7-15-2011 @ 2:31PM
will said...Our son had Kawasaki syndrome as a child and it was first diagnosed as strep/scarlet fever. Thankfully his doctor was aware of the disease and diagnosed him fairly quick after the initial diagnosis.
I am happy to say he is a happy healthy 23 year old today.
May God bless your son and your family.
Reply
7-15-2011 @ 11:08PM
motherirish said...My husband now 62 had Kawasaki's as a kid - and no one knew it. A cardiologist discovered it as he has large artery's that flood his heart with blood so his heart is large too. This all resulted in congestive heart failure. Make sure your kids see a heart specialist!!
7-15-2011 @ 2:34PM
OnlyMyOpinion333 said...What a great story! Very interesting how she actually personally knew those three facebook friends (although remotely) and how they helped her with her little sweetheart. I certainly hope he is completely better real soon and wish them the best....
Reply
7-15-2011 @ 2:50PM
Diane said...My 38 year old son also had Kawasaki as a 5 year old. Doctor first thought it was a penicillin allergy. At that time there was nothing they could do to support the diagnosis. BTW, he had classic Kawasaki symptoms.
7-15-2011 @ 8:05PM
C. said...Kawasaki Disease was my first guess...my little granddaughter had it when she was 7 years old and was misdiagnosed for quite a few days until she couldn't walk and her pediatrician finally sent her to Children's Hospital in Oakland, CA where they finally diagnosed her with K.D. K.D. is very symptomatic of many other diseases/illnesses and that is why it is so hard for most pediatricians to diagnose it (Unfortunately). My granddaughter is 14 now and perfectly find...I pray your son will be too.
Cindy...Brentwood, CA :)
7-15-2011 @ 2:55PM
Anna said...I'm a little confused... was she monitoring this son on FB or was it another older son? ... cause he looked WAY too young have a FB page...
Reply