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Mom Says Son's Life Was Saved Because of Facebook
Filed under: In The News
Deborah Copaken Kogan joined Facebook back in 2008, after her son was being bullied, and officials at his school suggested she monitor his page. But the social media site eventually became a sort of community for the New York mom -- and, she tells "Today," even saved her 4 -year-old son Leo's life.
"It was Mother's Day morning, Sunday morning, and Leo woke up with a rash," Copaken Kogan tells the news show. "I thought, oh, great, he got strep, we've got to go to the doctor. I'm waiting in the waiting room, feeling a little bored. I snapped the photo of my son -- and he was putting his blankie over his face -- and I said something like, 'Nothing says happy Mother's Day like a Sunday morning at the pediatrician."
The doctor agreed that it was likely strep -- the illness was going around his classroom, as well -- and gave her a prescription for amoxicillin.
"I thought great, we're done, he'll be better by tomorrow," she tells "Today."
When Leo hadn't got better by day three, Copaken Kogan posted another photo of her boy on Facebook.
"I said, I'm very concerned, you know, my kid looks very sick," she tells the news show. "Within the first hour of posting this photo, (I had) three friends telling me to go to the hospital, it could be Kawasaki disease. And once I got the strep culture and it came back negative, I just thought, that's it, I'm going. And I just called my doctor."
Copaken Kogan tells "Today" those Facebook messages were a catalyst.
"They said to me, here's the collective experience of 1,400 people, three of whom are telling me it could be Kawasaki disease, a very rare autoimmune disorder I had never heard (that) about effects 3,000 kids a year in the United States," she tells the show. "Many cases of Kawasaki disease don't actually get diagnosed until the fifth day, sixth day, because these symptoms mimic so many other illnesses."
Today, Leo is recovering, although his mom tells the news show his liver is still damaged and may take a year or so to regenerate. But she says he'll be fine.
"The fact that these friends on Facebook took a risk and said, 'sorry for butting in, but I think this could be Kawasaki,' was a miracle," Copaken Kogan tells "Today."











ReaderComments (Page 5 of 8)
7-15-2011 @ 5:40PM
Becky said...This is a good Mother that takes their child to the doctor on the week-end no less ......she was trying to get a proper diagnosis....yes doctors are good but it's a fact that in the ER some people have been treated, released, gone home, and passed away.
I think it was great that people helped her on line....now there's a really good story with a happy ending. Today's news always seems so depressing....this was just great and thanks to you all that had the courage to leave a message to the Mom....hope he will recover fully .....:)
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7-15-2011 @ 5:44PM
Wendy said...Glad it worked out...my 15 year old had Kawasaki 14 years ago when hardly anyone knew what it was. She presented very A-typical so it was a long hard diagnosis. Fortunately my pediatricians knew enough to send her to Babies Hospital in NYC so that she could get the care she needed. She is fine now and no longer needs echos. Always trust your instinct when it comes to your own children...nobody knows them better. Good luck and continued health!
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7-15-2011 @ 7:22PM
Red Tie said...ok i have no problem with this at all, but i mean this 4 year old has a FACEBOOK?! i think thats actually illegal...
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7-15-2011 @ 10:23PM
Roberta said...It wasn't Her 4 Year old with the account. It was Her other Son. (No age specified) who had been getting bullied. I assume a teen ager. And You know those darn modern teens know how to fudge ages and such when signing up for things. Kind of like hiding in the trunk to get into the drive-in back in the day. So She opened an account of Her own which She eventually visited on a regular basis. ;o)
Roberta
7-15-2011 @ 5:47PM
Doc said...First of all, it sounds like Leo is doing well, and that is a good ending to the story.
It is a little distressing to me the flak the primary physician is receiving about not making the initial diagnosis. Many disease entities manifest over time, and the clinical picture is made clear by time and poor response to treatment. The PCP may have had kawasaki on the DDx list, but it would be incredibly unlikely with a fever and sore throat of one day duration. The problem with this is not the first doctor who didn't diagnose the disease, but the failure to follow up when the kid doesn't get better. Kawasaski disease is VERY rare and almost impossible to diagnose at the first signs of disease. Initially it looks like strep, and based on incidence of disease much more likely to be almost anything than kawasaki. Other than the sore throat and rash, one of the key signs is the unremitting fever. The doc thought it was strep the first day he felt ill and the mother should have brought him back, either to clinic or ER, when she was seeing that he (most likely) had a fever for 3-4 days straight. Strep would likely respond. I understand the need to reach out but it is worrisome when you see parents posting photos of their child's disease rather than going in for help. People use the ER every day for menial problems - please know when your child is sick and don' fear using the ER when you need it.
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7-15-2011 @ 5:46PM
sandra cannon said...That's awesome, i totally believe in advocating for yourself or your family, I was mis-diagnosed on 3 major medical probs over the last three years by numerous Dr's, I kept on going and telling them they were wrong, in two of the cases I was absolutely correct in what I had been telling them for a year but it still took a year each for them to do an MRI (which I asked for on the onset of both, both are nerve damage and torn tendon) the other one my GYN was going to do a surgery on thenshe left a week before my appt to set a surgery date and the next person made me jump through all the hoops again even though it had already been done, i got into a serious medical situation because she did that against my wishes and the info from the GYN she took over for, in the end, i had to have a complete hysterectomy due to endrometreitis that would have beenfound if they just did he surgery as planned! ALL DR'S WANT IS TO TREAT SYMTOMS, THEY DO NOT WANT TO HAVE TO DO THEIR JOBS UNLESS YOU ARE A STAR OR RICH!!!!! Most of them do NOT go by the oath they took when graduating from med school, it is so disgustingly about money and NOT the patient, I am glad the government plans on watch-dogging them, thats the only way real people will ever get diagnosises instead of just treating synptoms, thanks to all the dr's that saw me, i now have permanent damage because they left me like that for so long even though on the first visit and every one after that, I told them what was wrong and they still didnt listen to me!!!!@#$%^&*!!!
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7-15-2011 @ 6:00PM
GJ said...After checking some sites online:
They don't know what causes Kawasaki disease. It seems to be a process of elimination. Usually only children under 5 develop it. They don't believe it's contagouis.
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7-18-2011 @ 2:50AM
jon said...Alice is a raacist dumbass
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7-15-2011 @ 7:52PM
pat said...PLEASE>>> I bet Facebook is the one who started this. Facebook is the Devils playground. If you wanna start some sh%% all you have to do is post it on facebook. Whole mess should be dismantled.
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7-15-2011 @ 6:16PM
terrapintexan said...I don't believe a word of this story. It's all apart of the Zuckerberg spin machine.
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7-15-2011 @ 8:01PM
gregg said...my thoughts exactly- the story just doesnt add up.
7-15-2011 @ 7:02PM
nyc745 said...I get that it helped her son and all but who the hell snaps a picture of their 4 year old sick on in the doctors office of all places, and probably just to look for the usual fake fb sympathy comments..
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7-15-2011 @ 7:07PM
susieq0408 said...Thank goodness all's well that ends well.. ? If my 4 y/o was still so sick after day 3 on meds that I felt compelled to comment on a social media site that my kid looked very sick...you can bet your sweet ass I wouldn't be posting yet another pic of my sick child and hanging around for an hour to see what comments I could garner; I'd be scooping up my very sick kid and getting him back to the Dr. Of course the Dr. is going to go with the most likely cause of illness and go from there if the prescribed course of treatment doesn't help...
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7-15-2011 @ 7:25PM
Stephanie said...My nephew who is 15 months old was also just diagnosed with Kawasaki Disease at first they told him parents that he had Hand Foot and Mouth Disease. He was in the hospital for 3 days and is still sick from it... they say it could be up to 6 months before he is fully recovered. they barely caught it before it could attack his heart.
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7-15-2011 @ 7:49PM
MiRN said...I'm glad that her son's outcome and prognosis is good. It is fortunate for her that two of the three that responded to her on facebook were actually physicians according to the video. A lesson learned is that if your child is not improving, or is actually getting worse despite treatment, the child needs to be evaluated again.
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7-15-2011 @ 7:59PM
gregg said...good god- she didnt take the kid back a second time to let the dr's diagnose him- 1400 facebook comments and 3 said it was this disease?
Did the facebook people cure him?
This is nothing more than a publicity stunt for Facebook which
I would not give a plugged nickle for.
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7-15-2011 @ 8:07PM
Bailey said...This mother should be commended for stepping out of the box and not relying on doctors to figure out her sons illness. It's sad, but many doctors don't care about their patients... In many doctors offices, they do standard tests just to get the patients out and to take care of the next. This woman was smart and took advice from other parents and other people... Never put all of your trust into a doctors hands. They are not perfect, and they are not always right.
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7-15-2011 @ 8:08PM
Lucia Moore said...It is positively appalling and somewhat what scary to see how ignorant and illiterate some people in our society really are. How could one not realize she was monitoring another son are you totally lacking in common sense? There is also no indication that this mother was using Facebook instead of seeking medical help. She had been to the doctor (first thing she did) her Facebook post was just a comment about something that was troubling her. Not a request for medical advice. Our schools seem to be failing in their attempt to educate. Reading comprehension is sorely lacking, even if the words are able to be read, putting them togather and making sense of what they are saying is not happening. Very, very sad and these are the same people who would be likely to comprise a jury pool. More than half the folks responding here did not understand what they read, how couild they possibly be expected to understand what is spoken.
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7-15-2011 @ 8:27PM
Mom said...My son had Kawasaki Disease 10 years ago..First we called his pediatrician and were told the office was too busy to see him, 103 fever, rash and overall aches...Then we went to Med-Express where they told us it may be spinal meningitis and we had to take him to the ER for a spinal tap...Mind you, this in on a 5 year old sick child...he squeezed my hand so hard thru this I thought it would break...When it came back negative they decided it must be German Measles and we had to report it to the Health Dept because his whole school had been exposed....I had an appointment with my family doctor and when I explained this to her she said to bring him in...the next day, the doctor called me and asked my to bring him to hospital to be seen by pediatric Cardiologist and was then treated he is fine now...
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7-15-2011 @ 9:02PM
Kathy Gordon said...My son had one of the first documented cases of Kawasaki disease 30 years ago. They first thought it was Rocky Mountain Spotted Fever. He was very very sick. Swollen tongue, fingers lips and very high fever. Thank God for the folks at Childrens Hospital in Seattle. He was a human pin cushion for a week. They didn't know what it was. He is now a Orthopedic Peditrian at Childrens Sunrise Hospital in Vegas. Good Luck to you. If you would like to stay in touch please contact me.
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