Sleep deprivation is a normal part of early parenthood. But for David and Shannon Lamb, sleep issues have taken on a whole new meaning. Their three-year-old son, Rhett, hasn't slept at all -- not a night, not a nap -- since he was born.

Rhett has a rare condition called chiari malformation, which his doctors believe is the cause of his sleeplessness. Patients with chiari malformation have a skull that is abnormally formed and puts pressure on the brain, causing it to protrude through the bottom of the skull. People with chiari malformation may have muscle weakness, vision problems, or coordination issues. Symptoms can range from nonexistent to severe.

When my life was very clear and perfectly manageable and I had all the answers to everything, which is to say, back before I became a mother, I'd sometimes see other parents with their children and think, Absolutely not. I will never do that when I have children of my own.

My list of "nevers" was firm and my resolve was strong. There was equipment I was never going to buy: anything loud or squeaky; anything that took up more space in a room than a couch; anything that was made of plastic, especially products with colors so bright they made your teeth hurt.

I was never going to be one of those parents who interrupted the person they were speaking with, mid-sentence, to issue directives to their kids, stop picking your nose this instant, because it was just so rude. My children would never be fussy eaters, or unappreciative of gifts. They wouldn't say naughty things, or be mean to each other, or me.