down syndrome 

A Little More: Red, white and blue

"You look like a flag," my husband Tom tells me and I smile, because I know what he means. We go through this every summer in the days leading up to the 4th of July. It's a bit ridiculous, I know: cheesy and sentimental and a little over-the-top. Bu...

A Little More: Pinwheels

I usually work in the mornings when the house is quiet, before the rush and hum of our lives takes over the day, like so many parents everywhere--trying to carve out a few extra moments; trying to keep my hand on the slim thread of my life before t...

A Little More: Bait-and-switch

My 5-year-old son Avery is a master of the bait-and-switch. This is what I mean: if we're working on his words, and I say, "Cracker," he'll say, "Dadah," and I'll say, "Try again, cr...cr...cr...cracker" in my loud, clear, speech-therapy voice, an...

A Little More: Now we are 5

The 2 little boys, Avery and Bennett, sit at the kitchen table and Tom is there and big brother Carter, too, and we are the perfect birthday scene: me carrying the homemade layer cake on a big white plate across the kitchen, everyone singing the "H...

A Little More: Everyday miracles

My son Bennett, who is 4-years-old-going on 5, has a habit of saying, "It's a miracle!" Sometimes he says it of things that, to me, don't seem particularly miraculous, like when we find the missing rain boot, or when the VCR finishes rewinding, or ...

Ice cream in fancy dishes

The checkout lady in the grocery store notices that I've bought every brown banana on discount, every bag of wrinkled mushrooms or bruised tomatoes or yellow squash just about to turn, plus every item in the sale flier including a half-gallon of ic...

The yelling house

Last week we got a puppy. One of the boys' favorite books is Audrey Wood's The Napping House. In it, a peaceful, sleeping house is transformed by a flea, a wakeful flea! And us, too. We've been transformed by 10 pounds of wiggling puppiness. He'...

A jelly bean for bravery

Bennett and I are sitting at the kitchen table holding hands. I glance idly at the log walls around us, the yellowing 1940s linoleum floor, the peeling wallpaper above the sink. It's the middle of the night. I haven't been up with this child, alone...

A new thing

Four-year-old Bennett is lounging in the over-sized cast iron bathtub, which is one of the very best things about the old log house we've been living in. His twin, Avery, decides that he wants to get in the tub with Bennett, and I hear Bennett say,...

Did I really just say that?

I was recently speaking with my friend Sheri about how ordinary my life is, most days, and how surprising this is to me. But I included the disclaimer, "If you accept physical therapy and speech therapy as normal (which by then, I did: speech thera...

The Buddy Walk

A while back, we were out and about when a gentleman came up to us in a parking lot. He explained that the battery had died on his minivan and asked if we could give him a jump. Naturally, we agreed and we began pushing his van into position. As we d...

Teen focuses on teaching about Down Syndrome

I have to admit that I don't know too much about Down Syndrome except for what I've seen in the media. With the exception of seeing a child with Down Syndrome at my church when I was younger, I can't remember knowing a person with Down Syndrome. One ...

Pinwheels - a blog of note

Like the other Blogging Baby staffers, I do an occasional "blog roundup", highlighting well-written or unusual parenting blogs that have caught my eye. Occasionally - very occasionally - a new blog reaches out and pulls me in so deeply that I'll spen...

Boy with down syndrome crowned winterfest king

Lewis Eastway isn't your stereotypical high school heartthrob. While he does play basketball (regularly making three-point free throws), he's not captain of the team -- or even on the team, for that matter. And yet, when he was crowned Winterfest Kin...

Special children, special schedule

Near the end of our prenatal classes, our instructor read us the story  Welcome to Holland. For those of you not familiar with it, it is an emotional and vivid description of what it is like to raise a child with a disability.  I'd already...

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